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The Teacher’s Guide to Neuromuscular Disease
Both teachers and parents will have many questions about how to best support a child with neuromuscular disease in the classroom. Available free from the MDA website, The Teacher’s Guide to Neuromuscular Disease will help answer these questions for teachers and parents.
Disability and Homelessness
According to a recent report, in 2010, for disabled individuals relying on U.S. Social Security Suplemental Income as their main or only source of income, Supplemental Income does not cover the cost of a modest one bedroom apartment. An estimated 20% of homeless adults in the U.S. are disabled.
Tuesdays with Morrie Book Review
While the book Tuesdays with Morrie: an old man, a young man, and life’s greatest lesson, by Mitch Albom, tells the true story of Morrie’s Schwartz’s illness and death, this book teaches as much about life and living well as it does about dying with dignity.
Acid Maltease Deficiency (AMD)
Acid Maltease Disease (AMD), which is also called Pompe Disease, leads to progressive weakness of the mucles in the hips, upper legs, upper arms, and respiratory system. The infantile onset form also affects the muscles of the heart.
My Family Health Portrait Resource
The My Health Family Portrait tool can help you map out your family health history. Available online, this tool is simple and easy to use. You may find this tool to be useful for communicating this important information to your health care providers.
Visit to an MDA Summer Camp
This year, I received an invitation to visit the MDA Summer Camp in the Grand Rapids, Michigan area on their visitor’s day. The MDA Summer Camps offer many different fun camp activities modified for the participation and enjoyment of children and teenagers who have physical disabilities.
Journal Writing and Neuromuscular Disease
While the benefits of personal writing have been well documented, some people find it difficult to get started. To help you, I have provided a few journaling prompts about the experience of having a neuromuscular disease to help you begin journaling.
Water Aerobics with Neuromuscular Disease
When my physician told me to consider non-impact exercise to protect my feet from further deterioration, I resisted at first. Non-impact exercises? How could I get a good workout with non-impact exercise? One of the options I have found includes water aerobics and swimming.
TSA Card Available for Travelers with Disability
While traveling through security checkpoints with a disability may not be easy, clear communication with the TSA Officers regarding one’s disability will simplify the process. The new TSA Disability Notification Card may make moving through airport security a little bit easier.
Respecting My Own Physical Limitations
When I fail to respect my physical limitations and rely on my own strength, I can easily over to it, and even hurt myself. When I respect the limitations that neuromuscular disease causes me, I avoid hurting myself, and, ultimately, can accomplish more.
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