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g Neuromuscular Diseases Site

BellaOnline's Neuromuscular Diseases Editor

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 F E A T U R E   A R C H I V E  

Archive by Date | Archive by Article Title

Duchenne Muscular Dystrophy
Duchenne muscular dystrophy (DMD) is one of the nine types of muscular dystrophies. The muscular dystrophies are a group of degenerative genetic diseases affecting the voluntary, and sometimes involuntary, muscles. DMD is caused by a problem in the gene that produces a protein called dystrophin.

Discover T’ai Chi for Back Care DVD Review
Overall, I would highly recommend this video, Scott Cole: Discover T’ai Chi for Back Care for learning a T’ai Chi practice that focuses on stretching and strengthening the back, improving balance, and gentle overall body exercise.

Obtaining a Handicapped Parking Permit
This year when I asked about receiving a handicapped parking permit, I received paperwork for a permanent placard. Find out more about who qualifies for a handicapped parking permit and how to obtain one if you do.

Spiritual Journaling
Recently, much of my journaling has taken the form of spiritual journaling. I have found this to be a valuable practice to help me cope with the neuromuscular disease, remember my many blessings, and strengthen my walk with G-d. Journaling has also been found to have important health benefits.

Sleeping Disorders in Neuromuscular Disease
If you have a neuromuscular disease, getting a good night of sleep may be difficult. Some research has suggested that as many as 40% of those with neuromuscular disease suffer from a sleeping disorder. Learn about sleeping disorders in those with neuromuscular disease.

Balance and Neuromuscular Disease
While everyone knows about the “five senses” – sight, hearing, smell, taste, touch – little attention is paid to another of important sense, the sense of balance, unless problems develop. Many of the neuromuscular diseases affect balance.

Darius Goes West Movie Review
Even though he has a debilitating and fatal disease, Duchenne Muscular Dystrophy (DMD), Darius Weems shows us how to live in the documentary Darius Goes West. With the help of eleven friends, 15-year-old Darius embarks on a cross-country quest. This true story inspires, educates and entertains.

Mitochondrial Myopathy
The mitochondrial myopathies are a group of genetic diseases that affect the mitochondria in the cells. These diseases are considered to be a neuromuscular disease, although this disease affects all the cells of the body.

What is proprioception?
While most student learn about the “five senses” in grade school, fewer students learn about an important sixth sense, proprioception. Proprioception involves the sense of where one’s body is in space, and is closely related to another important but often overlooked sense, one's sense of balance.

Performance Anxiety and Advocacy
Increasingly, I have opportunitites to speak to others about neuromuscular disease. I sometimes experience performance anxiety before or during my speaking, but have been learning to manage my stage fright.

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