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g Neuromuscular Diseases Site

BellaOnline's Neuromuscular Diseases Editor

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 F E A T U R E   A R C H I V E  

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Tuesdays with Morrie Book Review
While the book Tuesdays with Morrie: an old man, a young man, and life’s greatest lesson, by Mitch Albom, tells the true story of Morrie’s Schwartz’s illness and death, this book teaches as much about life and living well as it does about dying with dignity.

Acid Maltease Deficiency (AMD)
Acid Maltease Disease (AMD), which is also called Pompe Disease, leads to progressive weakness of the mucles in the hips, upper legs, upper arms, and respiratory system. The infantile onset form also affects the muscles of the heart.

My Family Health Portrait Resource
The My Health Family Portrait tool can help you map out your family health history. Available online, this tool is simple and easy to use. You may find this tool to be useful for communicating this important information to your health care providers.

Journal Writing and Neuromuscular Disease
While the benefits of personal writing have been well documented, some people find it difficult to get started. To help you, I have provided a few journaling prompts about the experience of having a neuromuscular disease to help you begin journaling.

Water Aerobics with Neuromuscular Disease
When my physician told me to consider non-impact exercise to protect my feet from further deterioration, I resisted at first. Non-impact exercises? How could I get a good workout with non-impact exercise? One of the options I have found includes water aerobics and swimming.

TSA Card Available for Travelers with Disability
While traveling through security checkpoints with a disability may not be easy, clear communication with the TSA Officers regarding one’s disability will simplify the process. The new TSA Disability Notification Card may make moving through airport security a little bit easier.

Respecting My Own Physical Limitations
When I fail to respect my physical limitations and rely on my own strength, I can easily over to it, and even hurt myself. When I respect the limitations that neuromuscular disease causes me, I avoid hurting myself, and, ultimately, can accomplish more.

Coping with Chronic Neuropathy DVD Review
In the DVD Coping with Chronic Neuropathy, Eugene Richardson brings uncommon understanding of neuropathy from his perspective as a long-term neuropathy patient, professional counselor, and patient advocate. He also displays humor and hope while covering this difficult topic.

T’ai Chi beginning practice DVD Review
When neuromuscular disease began to cause increased difficulty with my feet, my physician recommended Tai Chi as a healthy low-impact form of exercise. I purchased a copy of T’ai Chi beginning practice with David –Dorian Ross to teach me the basic movements of T’ai Chi.

Interactive Games for Young Children
Everyone loves to play, including babies and young children with disabilities that limit their mobility. Interactive movement games engage young children, gently exercise their muscles, teach them about social interactions, and help you to have fun together. Get started with a couple of examples.

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