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Sleep and Neuromuscular Disease Quiz
Test your knowledge about sleep. You can now take another new quiz, the Sleep and Neuromuscular Disease Quiz. You will find all the answers you need to answer this quiz in the articles Sleep and Neuromuscular Disease and What Happens When You Sleep? on the Neuromuscular Diseases site.
Resilience and Optimism
Research has shown that people can learn to be resilient, to face adversity well, as my father did after having a stroke. As I face of my own diagnosis of neuromuscular disease, I claim these qualities for myself.
Reflections of a Peacemaker Book Review
Reflections of a Peacemaker: A Portrait Through Heartsongs contains 250 previously unpublished poems by Mattie Stepanek, including his final poem. Written between the ages 3 and 13, some of the poems were funny, some were sad, and all were insightful and heartbreakingly honest.
Free Informational Resources from the MDA
The Muscular Dystrophy Association (MDA) offers a variety of free resources about neuromuscular disease. Updated regularly, these resources cover a wide variety of topics related to neuromuscular disease. Many MDA publications are available in Spanish as well.
Dragon NaturallySpeaking Premium Product Review
Recently, I began to have more difficulty using my hands. Most noticeably, I find that I sometimes have difficulty typing accurately. I decided to try a voice recognition program called Dragon Naturally Speaking Premium, Version 11 from a company called Nuance. Read a review of this product.
Walking for Fitness with Neuromuscular Disease
For those of you with neuromuscular disease who are still ambulatory, walking may be one of the safest forms of exercise for you. Check with your physician to find out if walking would benefit you and what type of bracing or equipment might best assist you.
Stress Expectation and Change
Broadly defined, there are two types of problems. There are problem that can be changed, fixed, improved, or made better, and problems that cannot. Spending time focusing on unfixable problems can become a major source of stress.
Book Review of Peripheral Neuropathy
What do numbness, shooting, difficulty with balance loss of muscle strength, and loss of bladder control all have in common? Each of these can be symptoms of peripheral neuropathy, as explained in the book Peripheral Neuropathy: When the Numbness, Weakness, and Pain Won’t Stop by Norman Latov.
Handling Grief Over Health Losses
When diagnosed with health problems such as neuromuscular disease, people often experience grief. Learn about the five stages of grief and how they apply to grief over health problems.
Extraordinary Measures Movie Review
The movie Extraordinary Measures was inspired by the true story of a family’s involvement in the search for a treatment for the neuromuscular disease Acid Maltese Deficiency (Pompe disease). This movie shows the power of hope and the human spirit to overcome seemingly insurmountable obstacles.
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