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The mitochondrial myopathies are a group of genetic diseases that affect the mitochondria in the cells. These diseases are considered to be a neuromuscular disease, although this disease affects all the cells of the body.
What is proprioception?
While most student learn about the “five senses” in grade school, fewer students learn about an important sixth sense, proprioception. Proprioception involves the sense of where one’s body is in space, and is closely related to another important but often overlooked sense, one's sense of balance.
Performance Anxiety and Advocacy
Increasingly, I have opportunitites to speak to others about neuromuscular disease. I sometimes experience performance anxiety before or during my speaking, but have been learning to manage my stage fright.
Airport Security and Disability
Going through airport security checkpoints can be daunting, especially when mobility issues make assistive devices necessary. Learn about how the Transportation Security Administration (TSA) has anticipated these needs and has made provisions for screening individuals with mobility issues.
Thank You Jerry Lewis
For more than 50 years, Jerry Lewis tirelessly served the Muscular Dystrophy Association (MDA) and the neuromuscular diseases community, raising both funds and awareness. The magnitude of Lewis’ service cannot be denied and will not be forgotten.
Easy Yoga for Arthritis DVD Review
While not specific to neuromuscular disease, the modifications and detailed instructions given in the exercise DVD Easy Yoga for Arthritis with Peggy Cappy: Yoga for the Rest of Us will make the yoga exercises demonstrated appropriate for many individuals with neuromuscular disease.
Disability and Homelessness
According to a recent report, in 2010, for disabled individuals relying on U.S. Social Security Suplemental Income as their main or only source of income, Supplemental Income does not cover the cost of a modest one bedroom apartment. An estimated 20% of homeless adults in the U.S. are disabled.
Tuesdays with Morrie Book Review
While the book Tuesdays with Morrie: an old man, a young man, and life’s greatest lesson, by Mitch Albom, tells the true story of Morrie’s Schwartz’s illness and death, this book teaches as much about life and living well as it does about dying with dignity.
Acid Maltease Deficiency (AMD)
Acid Maltease Disease (AMD), which is also called Pompe Disease, leads to progressive weakness of the mucles in the hips, upper legs, upper arms, and respiratory system. The infantile onset form also affects the muscles of the heart.
Journal Writing and Neuromuscular Disease
While the benefits of personal writing have been well documented, some people find it difficult to get started. To help you, I have provided a few journaling prompts about the experience of having a neuromuscular disease to help you begin journaling.
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