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MDA Summer Camps
Without specialized MDA camps, many children with neuromuscular disease might never have the opportunity to attend a summer camp, as most summer camps are not equipped to handle the specialized health needs and appropriate adaptations in activities for a child with neuromuscular disease.
Online College and Neuromuscular Disease
The availability of online learning courses for college students has greatly increased in the past decade. Online learning can provide easily accessible college education for students with neuromuscular disease and other types of disability.
Amotrophic Lateral Sclerosis
Amotrophic Lateral Sclerosis (ALS) is one of the motor neuron diseases. It affects the muscles of the legs and arms, throat, and mouth, and eventually involves all of the voluntary muscles, affecting eating and respiration, causing paralysis leading to death. May is ALS Awareness Month.
What Happens During Polysomnography?
At a sleep laboratory, the electrical output from the brain can be measured during sleep by a special machine called a polysomnograph (PSG). The PSG also measures eye movements, muscle tension, breathing, and heart rate.
What Happens During Sleep?
Sleep is much more than the absence of being awake. Every night during healthy sleep, your brain goes through five stages of sleep. Without enough sleep, your body and brain cannot get the rest needed to maintain health and your quality of life.
Seated Tai Chi for Arthritis DVD Review
Seated Tai Chi for Arthritis: 6 lessons with Dr. Paul Lam, is a DVD exercise program led by Dr. Paul Lam. This DVD provides detailed teaching and practice with a seated Tai Chi routine developed for individuals with arthritis, suitable for many individuals with neuromuscular disease.
The CMT Survivor's Guide
The Charcot Marie Tooth Association (CMTA) recently published a new resource for individuals who have been diagnosed with Charcot Marie Tooth (CMT) titled CMT Survivor’s Guide: a resource guide for living life your way.
What is Arthroscopic Surgery?
Arthroscopic surgery uses an arthroscope, a small flexible tool with a video camera and a light, to view the inside of a joint. Arthroscopy may be used for assessment and diagnosis. Other times, physicians use small instruments inserted through additional incisions to perform surgical procedures.
As area businesses again blossomed with green and gold Shamrock’s during February and March of 2014, I was again asked by my regional MDA office to act as a Shambassador. My duties would include visiting area businesses that participate in the MDA Shamrocks program to say thank you.
Clinical Trials for Neuromuscular Disease
Clinical trials involve experimental research in order to find more effective treatments and/or cures for disease. By becoming involved in research, whether as a participant, or through fundraising and advocacy, you can help to support ongoing research efforts in neuromuscular disease.
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