Wondering how I could I get a good workout with non-impact exercise, I found one of my favorite options on public television – a 30-minute exercise program called Classical Stretch.

Enrolling in a registry specific to neuromuscular disease will help individuals to be informed about clinical research regarding a specific disease or condition. In turn, disease registries will also aid researchers looking for qualified individuals to participate in research protocols.

Clinical trials involve experimental research in order to find more effective treatments and/or cures for disease. While neuromuscular disease cannot yet be cured, ongoing clinical trials (also called interventional studies) provide hope.

While neuromuscular disease is not funny, many of the situations that people find themselves in are funny. Seeing the humor in our struggles provides relief from stress and improve physical and emotional health.

The Abilities Expo organization holds events across the U.S.A. Admission to the Abilities Expo is free. Take the opportunity to learn about the many products, services, and non-profit organizations that serve those with physical challenges, including those with neuromuscular disease.

Gratitude, an attitude of thankfulness, does more than benefit the receiver. In individuals with neuromuscular disease, keeping a gratitude journal was found to improve energy, positive mood, feelings of connectedness, positive rating of one’s own life, and even sleep duration and quality.

I have a confession to make – I have no practical experience in fundraising. I have never put together a fundraiser on my own and find the task daunting. Recently I ventured into the fundraising arena in one of the simplest ways possible, through starting a Circle of Friends with the CMTA.

This time I have determined to handle my health difficulties differently than I before. Because I opened up to others, I found the strength that I need to handle my diagnosis of Charcot Marie Tooth in an emotionally health way. In turn, I have been able to help others.

Diseases that cause symptoms by directly affecting the central nervous system, rather than the peripheral nervous system, are not classified as neuromuscular disease. The symptoms of neurological diseases often overlap with other diseases, including neuromuscular disease, making diagnosis difficult.

Students that qualify for special education must have a formal Individualized Education Program (IEP). The IEP specifies the support that a child with physical and/or cognitive disability needs to succeed in the least restrictive environment.