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BellaOnline's Neuromuscular Diseases Editor

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My Family Health Portrait 3.0 Resource
The My Health Family Portrait tool can help you map out your family health history. Available online, this tool is simple and easy to use. You may find this tool to be useful for communicating this important information to your health care providers.

CMT Exercise Video Series from the CMTA
The Charcot Marie Tooth Association (CMTA), has been producing a series of short instructional videos demonstrating physical therapy exercises for individuals with Charcot Marie Tooth. Currently 4 of these videos are available at no cost at the CMTA website, with an additional 3 videos planned.

Clinical Trials and Neuromuscular Disease
Clinical trials involve experimental research in order to find more effective treatments and/or cures for disease. By becoming involved in research, whether as a participant, or through fundraising and advocacy, you can help to support ongoing research efforts in neuromuscular disease.

Singing, Health, and Neuromuscular Disease
While I did not start singing to improve my respiratory health, vocal exercises and singing with a choir have had significant health benefits for me. You might find similar benefits, while also experiencing the fun and joy that involvement with music brings into life.

ALS Association Webinar Series
The ALS Association offers webinars on a variety of topics regarding to research and care services related to amyotrophic lateral sclerosis (ALS). Each webinar features top researchers, specialists, and care providers. Interested individuals can attend a current or archived webinar at no cost.

Fitness Walking and Neuromuscular Disease
For those of you with neuromuscular disease who are still ambulatory, walking may be one of the safest forms of exercise for you. Check with your physician to find out if walking would benefit you and what type of bracing or equipment might best assist you.

Journaling for Wellness
Journaling can help you to reach greater self-awareness, process emotions, and improve your overall health and wellness. Find out about personal writing in this article.

Educational Webinars from the CMTA
The Charcot Marie Tooth Association (CMTA) now offers free educational webinars featuring top experts. Topics include a variety of topics related to diagnosis, treatment, and living with Charcot Marie Tooth (CMT). Make sure to view these important educational webinars.

Centers of Excellence and Neuromuscular Disease
Centers for Excellence provide cost efficient expert health care, leading to optimal outcomes. For individuals with neuromuscular disease, visiting a Center for Excellence can provide the opportunity for high quality, comprehensive medical care.

Kyphosis in Neuromuscular Disease
Kyphosis is a type of abnormal spinal curvature that causes the spine to curve excessively, causing a bowing or rounding. This leads to a posture that appears to be slouching or ‘hunchbacked.’ Curvature in the spine in individuals with neuromuscular disease usually affects the whole spine.

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