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International Neuromuscular Disease Websites
People from all over the world suffer from neuromuscular disease, and need to find accurate, appropriate, and effective information, support, and services. This article lists some of the web-links to organizations that serve the worldwide neuromuscular diseases community.
The CMT Survivor's Guide
The Charcot Marie Tooth Association (CMTA) recently published a new resource for individuals who have been diagnosed with Charcot Marie Tooth (CMT) titled CMT Survivor’s Guide: a resource guide for living life your way.
What is Arthroscopic Surgery?
Arthroscopic surgery uses an arthroscope, a small flexible tool with a video camera and a light, to view the inside of a joint. Arthroscopy may be used for assessment and diagnosis. Other times, physicians use small instruments inserted through additional incisions to perform surgical procedures.
As area businesses again blossomed with green and gold Shamrock’s during February and March of 2014, I was again asked by my regional MDA office to act as a Shambassador. My duties would include visiting area businesses that participate in the MDA Shamrocks program to say thank you.
Clinical Trials for Neuromuscular Disease
Clinical trials involve experimental research in order to find more effective treatments and/or cures for disease. By becoming involved in research, whether as a participant, or through fundraising and advocacy, you can help to support ongoing research efforts in neuromuscular disease.
Monotrail Mountain Masochist II Outdry Shoe Review
Overall, I highly recommend the Monotrail Mountain Masochist II Outdry shoe. Despite being used on ice, snow, and slush, these shoes have provided excellent comfort, fit, and stability while keeping my feet dry. When the weather improves, I look forward to using them for trail walking as well.
Snow Plowed Into Handicap Parking Violates ADA
Ice and a couple of inches of new snow covered the parking lot and sidewalk. Unfortunately, there were no handicap accessible parking spaces available near the entrance, as snow had been plowed into them in order to clear the rest of the parking lot.
U.S. Legislative Update for Neuromuscular Diseases
Currently, important legislation affecting the neuromuscular disease community in the U.S. remains under consideration. As members of this community, it is important to remain informed about this legislation and to act in support of any legislation that is important to you.
MDA’s Shamrocks Against Dystrophy Program 2014
Retailers all over the U.S.A. sell green Shamrocks and gold Shamrocks. The money raised through the Shamrocks Against Dystrophy Program funds research, education, summer camps through the MDA. In 2013, Shamrocks raised a record-breaking $23.3 million!
Resilience has been defined by psychologists as the ability to adapt well to the difficulties in our lives including all kinds of adversity and stress. Resilience can help those of us who are coping with significant health challenges such as dealing with neuromuscular disease.
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