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International Neuromuscular Disease Websites
People from all over the world suffer from neuromuscular disease, and need to find accurate, appropriate, and effective information, support, and services. This article lists some of the web-links to organizations that serve the worldwide neuromuscular diseases community.
Filling the Boot for MDA
You may see fire-fighters collecting funds at local parades and events. When you see your local firefighters campaigning to raise funds for the MDA, make sure to say thank you. Let them know how the MDA has helped you and your family. And, make sure to help fill the boot!
That All May Worship Resource Review
Too often, individuals with disability, including neuromuscular disease , have been excluded from religious participation. That All May Worship: An Interfaith Welcome to People with Disabilities will be useful towards eliminating barriers to access and making places of worship truly inclusive.
CMT Awareness Month 2014
Soon after last yearís successful CMT Awareness Month finished, organizers of the CMT Awareness Month 2014 began planning for the 2014 event. Through this event, the Charcot Marie Tooth Association (CMTA) educates the public and raises awareness about the neuromuscular disease Charcot Marie Tooth.
MDA SHOW of STRENGTH 2014
In itís 49th year, the 2014 Telethon broadcast will again use MDA SHOW of STRENGTH as its title. This year, the show will run on Sunday, August 31, for two hours from 9:00 p.m. to 11:00 p.m. ET. The MDA Show of Strength Telethon will run exclusively on the ABC Television Network.
What is the Disability Equality Index?
The Disability Equality Index (DEI) will provide a summary index of the inclusion practices of U.S. businesses regarding employment of individuals with disability. Ranging from 0 to 100, the index score will provide an objective benchmark measure.
Like a Flower Grows Volume 3 Launch
Like a Flower Grows, Volume 3 includes devotions about coping with the neuromuscular disease Charcot Marie Tooth (CMT). I hope to educate readers about this little-know hereditary peripheral neuropathy while sharing my spiritual journey and the connection between scripture and everyday life.
MDA's Art Collection
Through works of art, individuals express their experiences as individuals and as part of humanity. The works displayed in the Muscular Dystrophy Association Art Collection not only showcase the creative abilities of the individual artists but give a voice to those with neuromuscular disease.
Bernadette Documentary Review
What would it be like to live with a progressive degenerative disease? The documentary Bernadette explores the answer to this question as it depicts the life of Bernadette Scarduzio, a young adult with the little known hereditary neuropathy Charcot Marie Tooth (CMT).
My Buddy Book Review
My Buddy, a picture book written by Audrey Osofsky, tells the story of a boy with muscular dystrophy and companion dog, Buddy. Illustrated by Ted Rand, this book will help parents and teachers discuss important issues such as muscular dystrophy and physical disability with young children.
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