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g Neuromuscular Diseases Site

BellaOnline's Neuromuscular Diseases Editor

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 F E A T U R E   A R C H I V E  

Archive by Date | Archive by Article Title

Managing Caregiving Stress
Caregiving stress should be taken seriously and, left untreated, can lead to caregiver burnout. While the demands of caregiving may lead to stress, recognizing and taking action to manage caregiving stress will benefit the well-being of both the caregiver and the care receiver.

What is Caregiving Stress?
Caregiving stress arises from the emotional and physical challenges of providing caregiving. While caregiving for family member can be rewarding, caregivers often experience stress. Long term caregiving stress can lead to caregiver burnout if unrecognized and untreated.

Quizzes About Neuromuscular Disease
Try the six quizzes related to the Neuromuscular Diseases site, including the newest, the Neuromuscular Disease and the Feet Quiz. Quizzes give you a chance to test your knowledge in important areas that affect those with neuromuscular disease. Plus, they are fun and you just might learn something

Worldwide Neuromuscular Disease Consortia
Across the world, individuals are affected by neuromuscular disease. Finding effective information, support, and services plays a key role in managing neuromuscular disease. Access a list of website addresses for international consortia that serve the neuromuscular disease community worldwide.

MDAs Free Informational Resources
The Muscular Dystrophy Association (MDA) offers a variety of free informational resources about neuromuscular disease. Updated regularly, these resources cover a wide variety of topics related to neuromuscular disease.

International Neuromuscular Disease Websites
People from all over the world suffer from neuromuscular disease, and need to find accurate, appropriate, and effective information, support, and services. This article lists some of the web-links to organizations that serve the worldwide neuromuscular diseases community.

Filling the Boot for MDA
You may see fire-fighters collecting funds at local parades and events. When you see your local firefighters campaigning to raise funds for the MDA, make sure to say thank you. Let them know how the MDA has helped you and your family. And, make sure to help fill the boot!

That All May Worship Resource Review
Too often, individuals with disability, including neuromuscular disease , have been excluded from religious participation. That All May Worship: An Interfaith Welcome to People with Disabilities will be useful towards eliminating barriers to access and making places of worship truly inclusive.

CMT Awareness Month 2014
Soon after last yearís successful CMT Awareness Month finished, organizers of the CMT Awareness Month 2014 began planning for the 2014 event. Through this event, the Charcot Marie Tooth Association (CMTA) educates the public and raises awareness about the neuromuscular disease Charcot Marie Tooth.

MDA SHOW of STRENGTH 2014
In itís 49th year, the 2014 Telethon broadcast will again use MDA SHOW of STRENGTH as its title. This year, the show will run on Sunday, August 31, for two hours from 9:00 p.m. to 11:00 p.m. ET. The MDA Show of Strength Telethon will run exclusively on the ABC Television Network.

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