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g Neuromuscular Diseases Site

BellaOnline's Neuromuscular Diseases Editor

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 F E A T U R E   A R C H I V E  

Archive by Date | Archive by Article Title

Gratitude Works! Book Review
Highly recommended, Gratitude Works! A 21-Day Program for Creating Emotional Prosperity, written by Robert Emmons, Ph.D., overviews the body of research regarding the practice of gratitude. This book also lays out a three week program for starting a gratitude journal.

Hip Problems and Neuromuscular Disease
Until my recent injury, I had not considered the possibility that Charcot Marie Tooth could affect my hips. Neuromuscular disease can be a significant risk factor in the development of problems of the hip, however, including structural abnormalities, hip displacement, and arthritis.

Practicing Gratitude
I realized after a couple of days of feeling irritable and snapping at my family that I was having more than just an attitude problem -- I was having a gratitude problem. I had forgotten how much I have to be grateful. Instead, I was focusing on complaints and problems.

Dankso Kip Shoe Review
Finding shoes that fit properly with orthotics and Ankle Foot Orthoses (AFOs) can be challenging. Most of the time, I wore athletic shoes. So, I was excited when the salesperson at a local shoe store brought out the Dansko Kip to try. The Dansko Kip has the style of a casual lace-up loafer.

Newborn Screening and Pompe Disease Update
Recently, the U.S. Discretionary Advisory Committee on Heritable Disorders in Newborns and Children recommended that Pompe disease be added to the Recommended Uniform Screening Panel.

Meeting a Shooting STAR
Recently, I met a Shooting STAR. No, not a shooting star of the celestial kind, but of the human kind - the winner of the Charcot Marie Tooth Association’s “I’m a Shooting STAR” 2013 contest, ten-year-old Allison.

Influenza and Neuromuscular Disease
Individuals with neuromuscular disease are considered to be at high risk for complications from influenza such as pneumonia or bronchitis, hospitalization, and more rarely, death. Make sure to talk to your physician about influenza and ask if you should receive vaccination against the flu.

Chiropractic Care and Neuromuscular Disease
Chiropractic care refers to a form of alternative medicine in which a chiropractor uses mechanical manipulation of the spine and other joints in the body. Chiropracty has been found to be useful in pain reduction for individuals with neuromuscular disease by researchers.

Disease Registries for Neuromuscular Disease
Disease registries have been formed to aid researchers searching for qualified individuals to participate as subjects in research protocols. Such research is needed to advance knowledge regarding the diagnosis and treatment of neuromuscular disease.

Medical Equipment Assistance Programs
Many individuals with neuromuscular disease require medical equipment. The cost of equipment can be prohibitive, however, and medical insurance does not always provide good coverage. Fortunately, there are programs available to assist individuals in obtaining the needed equipment.

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