logo
g
Beauty & Self
Books & Music
Career
Computers
Education
Family
Food & Wine
Health & Fitness
Hobbies & Crafts
Home & Garden
Money
News & Politics
Relationships
Religion & Spirituality
Sports
Travel & Culture
TV & Movies

dailyclick
Bored? Games!
Nutrition
Postcards
Take a Quiz
Rate My Photo

new
European Travel
Action Movies
Bible Basics
Houseplants
Romance Movies
Creativity
Family Travel


dailyclick
All times in EST

Low Carb: 8:00 PM

Full Schedule
g
g Neuromuscular Diseases Site

BellaOnline's Neuromuscular Diseases Editor

g
 F E A T U R E   A R C H I V E  

Archive by Date | Archive by Article Title

Congenital Muscle Disease Registries
Recently, several new registries for individuals with various forms of congenital muscle disease have been started. These registries create databases in order to improve awareness, research effectiveness, and communication. Participation is voluntary and confidentiality will be protected.

Legislative Advocacy and Neuromuscular Disease
Lately, I have become increasingly involved in legislative advocacy. These efforts regularly involve writing to my elected officials to raise awareness regarding issues such as research funding and legislation regarding quality of life issues for those with neuromuscular disease.

Social Networking and Neuromuscular Disease
Social networking has made connecting with others easier than ever. Interacting through social networks may be especially beneficial for those who have significant disability limiting their opportunities to interact with others in person, including many people with neuromuscular disease.

Genetic Testing - To Test or Not to Test?
Many neuromuscular disease diagnoses can now be confirmed by genetic testing. But many facing the decision to test or not to test may have questions about whether or not to pursue genetic testing. These questions may become even more complicated when children are involved.

Obstructive Sleep Apnea and Neuromuscular Disease
Weakened respiratory and upper airway muscles caused by neuromuscular disorder can cause insufficient breathing during sleep in both adults and children, leading to increased risk of obstructive sleep apnea (OSA). During obstructive sleep apnea, a person has reduced air flow or stops breathing.

Translational Research and Neuromuscular Disease
Translational research into neuromuscular disease focuses on taking basic research advances and ‘translating’ these results into usable therapies. Researchers are increasingly finding applications for basic research to the diagnosis, progression, and treatment of neuromuscular disease.

Contractures and Neuromuscular Disease
Contractures occur in the joints of many individuals with neuromuscular disease. These include muscular dystrophy, myopothy, Charcot Marie Tooth, ALS, and Friedrich’s ataxia. Contractures cause deformity in the affected joint, often leading to pain and functional difficulties.

Suzanne Andrews Functional Fitness DVDs Review
The Functional Fitness DVD series, created by occupational therapist Suzanne Andrews, provides a series of videos aimed at increasing functional fitness for those experiencing health issues. For purposes of this review, her Arthritis and Pain Free Back & Neck DVDs were sampled.

MDA's Free Public Webinar Series
Since 2010, the Muscular Dystrophy Association (MDA) has produced a series of free live and archived educational presentations called the Public Webinar Series. Expert-led topics include a variety of important issues. Make time to attend a high quality educational presentation from your own home.

“It’s Not Fair!” – Coping Spiritually
No, life is not fair: however, the more I focus on what I perceive others have that I do not have , the more unhappy and envious I become. I could easily allow myself to lose my joy. My antidote comes from focusing on prayer and gratitude to God, most often through my journaling.

Pages of Results:
1 | 2 | 3 | 4 | 5 | 6 | 7 | { 8 } | 9 | 10 | 11 | 12 | 13 | 14 | 15 | 16 | 17 | Next

RSS | Editor's Picks Articles | Top Ten Articles | Site Map



g

For FREE email updates, subscribe to the Neuromuscular Diseases Newsletter

g features
What is the 21st Century Cures Initiative?

MDA Free Informational Resources

Worldwide Neuromuscular Disease Consortia

Archives | Site Map

forum
Forum
email
Contact

Past Issues
memberscenter


vote
Poetry
Daily
Weekly
Monthly
Less than Monthly



BellaOnline on Facebook
g


| About BellaOnline | Privacy Policy | Advertising | Become an Editor |
Website copyright © 2014 Minerva WebWorks LLC. All rights reserved.


BellaOnline Editor