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Babies with Hydrocephalus
Pediatric hydrocephalus can be prenatally diagnosed via ultrasound and involves a buildup of the cerebrospinal fluid (CSF) that cushions the brain. Early diagnosis and treatment by placement of a shunt system to divert the extra cerebrospinal fluid to an area where it can be reabsorbed is helpful.
Children of Divorce - Childhood Disabilities
Issues in families where parents are divorced or separated can be slightly more complicated when one of the 'children of divorce' has a disability or developmental delay. Helping build resilience in our children benefits everyone in the family during and after divorce.
Vestibular Disorders - Childhood Disabilities
Older children and teens with vestibular disorders may experience dizziness and problems with balance that negatively affect their development and everyday lives. Younger children with sensory processing or sensory integration disorders may experience balance problems with or without vertigo.
Neurofibromatosis is a set of 3 genetic disorders causing tumors to grow along the covering of nerves, also affecting bones and skin. Earliest symptoms in babies with the most common type of neurofibromatosis (NF1) are café au lait birthmarks. Two-thirds of individuals with NF1 are mildly affected.
Yoga and Childhood Disabilities
Yoga classes may be beneficial for children, but should be taught by certified and responsible instructors, like all physically demanding activities for children and especially for those who have developmental disabilities, motor planning delays, physical challenges, or chronic health conditions.
Papoose Board Restraints - Dental or Medical Uses
Use of restraint boards or passive restraints for medical or dental procedures can be frightening and traumatizing for patients with developmental disabilities and those who are unable to communicate due to injury or illness; often insulting to Native Americans to refer to misuse as Papoose Boards.
Talking to Your Daughter About Her Period
Daughters with developmental disabilities may have even more difficulties than their mainstream peers expressing their questions and concerns about the physical changes that occur at puberty. Planning and preparing for a daughter's first period can help her become more adept and confident.
Strange Families and Childhood Disabilities
Studies of families who include a child with a disability show them to be fairly ordinary, even though inspirational stories may describe them as extraordinary. There is anecdotal evidence that many families raising children with multiple disabilities or chronic health concerns are somewhat strange.
Down Syndrome - Treatment Research
Families question the uneven funding of research into treatment and support for Down syndrome compared to investments in prenatal testing. However, we should be encouraged by the comparative funding of treatment research now compared to even a decade ago. It also benefits the general population.
Regular Ed, Kindergarten and the IEP Season
May is IEP season but for most parents negotiations for the next school year's individual education plan can extend into June or July, or be carried over to that start of the next school year. Incoming kindergarteners may miss special events welcoming mainstream 5 year olds to their local schools.
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