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Down Syndrome - Treatment Research
Families question the uneven funding of research into treatment and support for Down syndrome compared to investments in prenatal testing. However, we should be encouraged by the comparative funding of treatment research now compared to even a decade ago. It also benefits the general population.
Regular Ed, Kindergarten and the IEP Season
May is IEP season but for most parents negotiations for the next school year's individual education plan can extend into June or July, or be carried over to that start of the next school year. Incoming kindergarteners may miss special events welcoming mainstream 5 year olds to their local schools.
Asthma and Allergies in Early Childhood
Children with asthma and allergies can live much fuller lives today than any time in history. Parents whose children have asthma and allergies educate extended family, school staff and other caregivers about the extra risks their children face every day.
Subtle Design Features and Disability Awareness
Sometimes what seems like a thoughtless design incorporating a disability awareness message or function is misinterpreted by those who have not thought out the actual challenges that a person with that disability experiences or assumes the person with a disability has limits they do not experience.
Mothers Day Crafts - Childhood Disabilities
Teaching children what Mother's Day means and seeing them delight their moms with gifts and cards is why the holiday was invented. Many kids with disabilities enjoy making a macaroni necklace, one of a kind bracelet, decorated photograph, computer designed artwork, advocacy pin or thank you note.
Negotiating an Inclusive Kindergarten Placement
A quarter century after children with Down syndrome and other developmental disabilities demonstrated the benefits of mainstream kindergarten for themselves and their classmates, parents are still finding obstacles to enrolling their 5 year olds in neighborhood schools with their mainstream peers.
Baseball Stories - Down Syndrome
My son has been a fan of baseball since he was a toddler. Many other children and teens with Down syndrome love the game, just like their mainstream peers.
Parent Isolation and Childhood Disabilities
Mothers of children with disabilities can feel isolated due to insensitive comments and discrimination against their children; feelings of failing at being congenial 'ambassadors' - as well as the usual reasons mainstream moms feel they not living up to an ideal vision of perfect mothering. Whew!
Adoption by Gay or Lesbian Parents
Adoption or foster care of babies and children with disabilities by gay or lesbian parents requires attention to be paid to the issues that may otherwise create greater challenges during childhood.
Respectful language means using "person first" word order, and avoiding use of the "R-word" and hate language. But being aware of the damage that hate language and bullying causes means that we can no longer be bystanders when others use derogatory words and comments to tease vulnerable children.
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