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Organ Transplants and Developmental Disability
In 1995, Sandra Jensen was initially denied a heart/lung transplant because she was born with Down syndrome and medical professionals felt she would be unable to manage post-operative care. In 2012, a young patient with intellectual disability was denied a kidney transplant even with a family donor
Early Intervention and Advocacy - Then and Now
The first early intervention programs for children with developmental disabilities began as preschool studies of children with Down syndrome. Films, photos and videos showing their potential and accomplishments raised professional and public awareness, like today's advocates using social media.
Bacterial and Viral Pneumonia
Parents and caregivers of babies and children with disabilities should be familiar with the symptoms and lack of symptoms seen with bacterial and viral varieties of pneumonia.
New Resolutions and Childhood Disabilities
New Year resolutions for parents of children with disabilities, delays, or chronic health conditions often have less to do with the child or the diagnosis than they do the relationships we have with family, friends, and professionals involved in our children's care.
Holidays and Family Stress
There are many reasons that winter holiday stress complicates the lives of families of children with disabilities, developmental delays or chronic health conditions. There are more reasons to dwell on the joy and let the stress take a holiday.
When My Son was Born with Down Syndrome
I became sensitive to certain words and phrases when my son was born and diagnosed with Down syndrome. I am grateful that his pediatrician developed his own awareness without my intervention. A good doctor can learn from every new patient. Some average doctors may overwhelm by their own ignorance.
Moya Moya Disease and Down Syndrome
Moya Moya disease is a rare condition slightly more common in children with Down syndrome and should be considered if an individual with DS of any age shows symptoms of stroke, seizures, headache or continued loss of cognitive abilities. The Stanford Moyamoya Center has treated patients since 1991.
Using Business Cards for Communication
Individuals with communication challenges or Down syndrome may find using business cards helpful while networking and building relationships in the community, establishing themselves as advocates as they develop the habit of exchanging cards with medical and educational professionals at meetings.
Co-Teaching and Inclusive Education
Co-teaching of inclusive classrooms has been proven successful and productive for more than a decade. Teaching staff, families, and the students involved have positive responses about their experiences with inclusive classrooms, with benefits in both academics and socialization.
Advocating for Children with Type One Diabetes
Children with diabetes have unique and individual circumstances that cause a great variety of specific challenges and interventions within general guidelines for safety and health. Advocating for one child at a time creates better opportunities for every child and teen with diabetes.
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