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When My Son was Born with Down Syndrome
I became sensitive to certain words and phrases when my son was born and diagnosed with Down syndrome. I am grateful that his pediatrician developed his own awareness without my intervention. A good doctor can learn from every new patient. Some average doctors may overwhelm by their own ignorance.
Moya Moya Disease and Down Syndrome
Moya Moya disease is a rare condition slightly more common in children with Down syndrome and should be considered if an individual with DS of any age shows symptoms of stroke, seizures, headache or continued loss of cognitive abilities. The Stanford Moyamoya Center has treated patients since 1991.
Using Business Cards for Communication
Individuals with communication challenges or Down syndrome may find using business cards helpful while networking and building relationships in the community, establishing themselves as advocates as they develop the habit of exchanging cards with medical and educational professionals at meetings.
Co-Teaching and Inclusive Education
Co-teaching of inclusive classrooms has been proven successful and productive for more than a decade. Teaching staff, families, and the students involved have positive responses about their experiences with inclusive classrooms, with benefits in both academics and socialization.
Advocating for Children with Type One Diabetes
Children with diabetes have unique and individual circumstances that cause a great variety of specific challenges and interventions within general guidelines for safety and health. Advocating for one child at a time creates better opportunities for every child and teen with diabetes.
Non-Invasive Prenatal Testing for Down Syndrome
The National Down Syndrome Society has established criteria to evaluate companies that develop non-invasive prenatal diagnostic tests for Down syndrome. Advocates are encouraged to contact the company currently promoting one of the first of these to be available, Sequenom.
Mainstream Classes and Loneliness
Advocates for inclusive education, mainstream academic opportunities and support in regular classrooms find that socialization and lifelong friendships are wonderful side benefits to inclusion for students with developmental disabilities. Special education classrooms are not the cure for loneliness.
Executive Functioning and Behavior Issues
Families of children with Down syndrome and behavior issues may not understand the challenges of executive functioning difficulties. Our sons and daughters need to take the time they need to respond to requests or comments, prepare for new situations, or have other special needs accommodated.
Plastic Surgery and Down Syndrome
Very few families of young children with Down syndrome choose to look into the option of plastic surgery to reduce facial characteristics in hopes that their children find better opportunities and less prejudice in school and community programs. Elective surgeries often carry risks with no benefits.
Camp Prime Time Family Camp
Camp Prime Time is a family camp in the Wenatchee National Forest near Clear Lake and Yakima, WA. Children, teens or adults with a developmental or physical disability or serious health condition and their families can enjoy a relaxed, supportive and inclusive community in a beautiful setting.
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