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Pain Tolerance and Down Syndrome
Medical professionals who have been taught that individuals with Down syndrome have a high tolerance for pain are much less likely to consider basic pain management strategies for patients in their care. Some children and teens are stoic, and others lack communication skills to express it.
No Safe Vacation from Type 1 Diabetes
There is no vacation from Type One Diabetes. The closest a child or teen with T1D can get to a safe vacation from diabetes is to have a reliable family member, friend or other significant person to share small responsibilities for a few hours, or a day.
Having Fun with Children Who Have Disabilities
Families of children with disabilities know that having fun is as important to schedule into daily routines as any kind of therapy, medication, or appointment.
Dental Work, Orthodonthia and Down Syndrome
Children and teens with Down syndrome often have a combination of issues that affect their mouths, gums and teeth. Orthodontists and other dental professionals who work with patients who have Down syndrome report positive relationships and excellent outcomes with appropriate orthodontic care.
Managing Rude Adults Who Insult Our Kids
Although most people have been taught that confrontational remarks are inappropriate on social occasions, speaking the truth in the face of a terrible lie is something parents are meant to do. We can't find the right words to speak out against prejudice, discrimination, and ridiculous stereotypes.
Father and Child Relationships - Disabilities
Every relationship between a father and a child with a disability is unique. It is difficult to predict how each relationship will develop over time. Differences between sibling relationships with their father may be related more to the age, interest and personality of the child than any diagnosis.
Attention Deficit Hyperactivity Disorder - ADHD
Children with Attention Deficit Hyperactivity Disorder (ADHD) have difficulty managing impulses and distractions, resulting in unintentional behavior. They benefit from support and accommodations to help them focus, attend to tasks, reduce or avoid meltdowns, and channel their extraordinary energy.
Ableist Arrogance at a Candy Store
An unexpected opportunity to be a gladiator advocate at a candy store found me unprepared to respond when a store employee singled out my son for humiliation. Stunned and confused, I said nothing. Identifying as an ambassador rather than an activist left my son vulnerable as a customer. Never again.
Childhood Apraxia of Speech - CAS
Children with verbal apraxia have a diverse set of speech and communication challenges that make it almost impossible for them to speak clearly without specific help with motor planning and other issues. They deserve community support, interested listeners, and alternative ways to communicate.
Articles about Down Syndrome - Then and Now
With a greater online audience for articles and interviews about the potential and accomplishments of children and teens with Down syndrome, there is also a higher incidence of negative comment and ignorant prejudice expressed that can distract us from advocacy and awareness messages.
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