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Families raising children with Angelman Syndrome are excellent advocates for their sons and daughters and often reach out to other families raising as newly-diagnosed babies. Early intervention for feeding problems, developmental delays, supportive therapy and medications for childhood seizures.
Good Health Habits and Food Safety
Practicing good health habits and being aware of food safety rules is important for all children, but even more for those with disabilities, chronic health conditions or reduced immune response. School staff, extended family and other caregivers may be unaware of health and safety issues.
The Importance of Attitudes about Prenatal Testing
Some parents and disability advocates characterize a television segment about Sequenom's MaterniT21 PLUS test for Down syndrome as an advertisement promoting negative stereotypes and misinformation. They say it was insensitive in tone, language and attitude, and lacking real parent representation.
Kindergarten and Childhood Disabilities
Parent advocates in the past quarter century have found that creating an inclusive placement for their children's kindergarten year is the best way to improve opportunities and access for the rest of their children's school years and transition to adulthood.
Surgery Waiting Rooms and Single Moms
Single mothers of children with developmental disabilities and chronic health conditions may have a very shallow support system when a son or daughter is hospitalized or needs surgery.
Something for the Pain - Parent Comments
When reading powerful testimony of a father's love found in E.R. Doc Paul Austin's excerpt from SOMETHING FOR THE PAIN, it may take a second reading to learn something from his honesty. Comments at the Bloom site could result in a much greater outcome than drawing more lines between US and THEM.
Your Child is Too Big for a Stroller
Media personalities should acknowledge the situation of children with invisible disabilities. The animosity toward moms whose children are considered too big to ride in strollers stems from what were meant to be humorous depictions of kids in silly poses being pushed in strollers too small for them.
School Safety - Staff Should Not Carry Weapons
It is a mistake to believe that arming teachers and staff in schools will reduce school violence, increase safety, or protect the school community even in cases where the campus endures an armed attack.
Thoughts on the Sandy Hook Elementary Tragedy
Our hearts go out to those affected by the terrible events at Sandy Hook Elementary and Newtown Connecticut, especially the victims and their families, first responders and staff; and the community that has to somehow absorb the horror of that day.
Holiday Breaks and Childhood Disabilities
Parents of children with disabilities may struggle more than their mainstream peers to plan activities, schedule play dates or find childcare when school is not in session during holidays. Changes in sleep schedules and differences in daily routines can be challenging for both parents and children.
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