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Civil Rights, Prejudice and Disabilities
Parents of newly diagnosed babies or young children may assume that staff and volunteers at EICs. schools and community have the training or experience to dispel prejudice, and implement best practices while interacting with children and teens. Some pay a terrible price to learn never to assume.
Blepharitis - Eyelid Inflammation Eyelash Flaking
My son had what looked like eyelash dandruff with redness at the root of his eyelashes when he was a baby. His pediatric opthamologist diagnosed him with Blepharitis and gave me directions on how to clean the roots of his eyelashes twice a day. Warm compresses and eyedrops were later prescribed.
Social Media, Texting and Online Relationships
For individuals with a developmental disability, texting or social media offer opportunities to connect, communicate and participate without a diagnosis getting in the way. But it can be as difficult to 'read between the lines' in texts, phone calls and status updates as understanding in person.
Translations about Childhood Disabilities
The beauty of multicultural communities is how we benefit from the diversity of families, traditions and ways of viewing the world. Providing information about childhood disabilities in many languages helps educate families, translators, and whole communities where our children grow and thrive.
Fainting Due to Vasovagal Syncope
Some teens faint due to vasovagal episodes: a drop in blood pressure and heart rate with a pooling of blood in the legs and lack of oxygen to the brain, usually caused by fear; anticipation of injury or pain; the sight of blood or needles; heat exposure; extended standing; straining or shock.
When Parents Are Not Their Child's Best Advocates
Although moms have been and always will be her child's best advocate, we may not be the best person for the job on certain occasions. We may have done our homework and built great relationships but are misdirected, stopped or co-opted by determined, experienced professionals focused on budgets.
Families raising children with Angelman Syndrome are excellent advocates for their sons and daughters and often reach out to other families raising as newly-diagnosed babies. Early intervention for feeding problems, developmental delays, supportive therapy and medications for childhood seizures.
Good Health Habits and Food Safety
Practicing good health habits and being aware of food safety rules is important for all children, but even more for those with disabilities, chronic health conditions or reduced immune response. School staff, extended family and other caregivers may be unaware of health and safety issues.
The Importance of Attitudes about Prenatal Testing
Some parents and disability advocates characterize a television segment about Sequenom's MaterniT21 PLUS test for Down syndrome as an advertisement promoting negative stereotypes and misinformation. They say it was insensitive in tone, language and attitude, and lacking real parent representation.
Kindergarten and Childhood Disabilities
Parent advocates in the past quarter century have found that creating an inclusive placement for their children's kindergarten year is the best way to improve opportunities and access for the rest of their children's school years and transition to adulthood.
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