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g Neuromuscular Diseases Site

BellaOnline's Neuromuscular Diseases Editor

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 F E A T U R E   A R C H I V E  

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Writing to Find Meaning
Often, it becomes difficult to find the meaning behind the difficulties we go through. Experiencing a neuromuscular disease can leave one wondering how to make sense of it all. Many people find writing to be cathartic. The technique called clustering can help you to find meaning in your situation.

Why are MS and CP Not Neuromuscular Diseases?
Diseases that cause symptoms by directly affecting the central nervous system, rather than the peripheral nervous system, are not classified as neuromuscular disease. The symptoms of neurological diseases often overlap with other diseases, including neuromuscular disease, making diagnosis difficult.

What is proprioception?
While most student learn about the “five senses” in grade school, fewer students learn about an important sixth sense, proprioception. Proprioception involves the sense of where one’s body is in space, and is closely related to another important but often overlooked sense, one's sense of balance.

What is Neuromuscular Disease?
Neuromuscular disease actually consists of a group of diseases. The common element in neuromuscular disease is that each of these diseases affects the peripheral nervous system. This category covers a wide range of varying diseases however, and these disease vary considerably.

What is Functional Fitness Training?
Functional fitness can help individuals with neuromuscular disease strengthen the muscles that they need to perform everyday activities. This can lead to improved balance, reduced injuries, and an improved quality of life.

What is Behavioral Sleep Medicine?
Behavioral Sleep Medicine, used in conjunction with appropriate medical interventions, can help individuals with co-occurring neuromuscular disease and sleep disorder to get a better night’s sleep and to function better during the day.

What is Ataxia?
The term ataxia refers to an inability to coordinate voluntary muscular movements involving the head, trunk, and/or limbs, affecting movement and balance and sometimes speech and/or eye movement. The primary symptom of the neuromuscular disease Friedreich’s ataxia is ataxia.

What is an IEP?
Students that qualify for special education must have a formal Individualized Education Program (IEP). The IEP specifies the support that a child with physical and/or cognitive disability needs to succeed in the least restrictive environment.

What is a 504 Plan?
Schools in the U.S. that receive federal funding must adhere to the provision in Section 504 of the federal Rehabilitation Act of 1973. Section 504 guarantees individuals with disabilities equal access to education as a civil right. Plans based on Section 504 are referred to as 504 Plans.

What Happens During Sleep?
Sleep is much more than the absence of being awake. Every night during healthy sleep, your brain goes through five stages of sleep. Without enough sleep, your body and brain cannot get the rest needed to maintain health and your quality of life.

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