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MDA Summer Camps
Without specialized MDA camps, many children with neuromuscular disease might never have the opportunity to attend a summer camp, as most summer camps are not equipped to handle the specialized health needs and appropriate adaptations in activities for a child with neuromuscular disease.
MDA Transitions Center
The Muscular Dystrophy Association Transitions Center focuses on the needs of teens and young adults with neuromuscular disease. Launched in 2011, this site offers support, information, and resources targeting this group while also raising awareness of the challenges this group will experience.
MDA's Art Collection
Through works of art, individuals express their experiences as individuals and as part of humanity. The works displayed in the Muscular Dystrophy Association Art Collection not only showcase the creative abilities of the individual artists but give a voice to those with neuromuscular disease.
MDA's Free Webinar Series
The Muscular Dystrophy Association (MDA) has produced a series of free live and archived educational presentations called the Public Webinar Series. Expert-led topics include a variety of important issues. Make time to attend a high quality educational presentation from your own home.
MDA’s Shamrocks Against Dystrophy Program 2015
Each year, retailers all over the U.S.A. sell green Shamrocks and gold Shamrocks. The money raised through the Shamrocks Against Dystrophy Program funds research, education, summer camps through the MDA. In 2014, Shamrocks raised $21 million!
MDAs Free Informational Resources
The Muscular Dystrophy Association (MDA) offers a variety of free informational resources about neuromuscular disease. Updated regularly, these resources cover a wide variety of topics related to neuromuscular disease.
Medical Equipment Assistance Programs
Many individuals with neuromuscular disease require medical equipment. The cost of equipment can be prohibitive, however, and medical insurance does not always provide good coverage. Fortunately, there are programs available to assist individuals in obtaining the needed equipment.
Meeting a Shooting STAR
Recently, I met a Shooting STAR. No, not a shooting star of the celestial kind, but of the human kind - the winner of the Charcot Marie Tooth Association’s “I’m a Shooting STAR” 2013 contest, ten-year-old Allison.
Microsoft Natural Ergonomic Keyboard 4000 Review
When I need to type, I have been using an ergonomic keyboard by Microsoft, called the Natural Ergonomic Keyboard 4000. This keyboard features a split keyboard design, with the two halves curved slightly. It also has a padded wrist rest. Using this keyboard does put less stress on my wrists.
The mitochondrial myopathies are a group of genetic diseases that affect the mitochondria in the cells. These diseases are considered to be a neuromuscular disease, although this disease affects all the cells of the body.
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