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Medical Equipment Assistance Programs
Many individuals with neuromuscular disease require medical equipment. The cost of equipment can be prohibitive, however, and medical insurance does not always provide good coverage. Fortunately, there are programs available to assist individuals in obtaining the needed equipment.
Meeting a Shooting STAR
Recently, I met a Shooting STAR. No, not a shooting star of the celestial kind, but of the human kind - the winner of the Charcot Marie Tooth Association’s “I’m a Shooting STAR” 2013 contest, ten-year-old Allison.
Microsoft Natural Ergonomic Keyboard 4000 Review
When I need to type, I have been using an ergonomic keyboard by Microsoft, called the Natural Ergonomic Keyboard 4000. This keyboard features a split keyboard design, with the two halves curved slightly. It also has a padded wrist rest. Using this keyboard does put less stress on my wrists.
The mitochondrial myopathies are a group of genetic diseases that affect the mitochondria in the cells. These diseases are considered to be a neuromuscular disease, although this disease affects all the cells of the body.
Monotrail Mountain Masochist II Outdry Shoe Review
Overall, I highly recommend the Monotrail Mountain Masochist II Outdry shoe. Despite being used on ice, snow, and slush, these shoes have provided excellent comfort, fit, and stability while keeping my feet dry. When the weather improves, I look forward to using them for trail walking as well.
Muscular Dystrophy Association (MDA) Resources
Find out about the many services the Muscular Dystrophy Association provides to people with neuromuscular diseases.
My Buddy Book Review
My Buddy, a picture book written by Audrey Osofsky, tells the story of a boy with muscular dystrophy and companion dog, Buddy. Illustrated by Ted Rand, this book will help parents and teachers discuss important issues such as muscular dystrophy and physical disability with young children.
My Child Has CMT Review
The publication My Child Has CMT: A guide for parents of children with Charcot-Marie-Tooth can help to answer the many questions parents of a child with CMT will have, and will help parents to connect their child with treatment and resources.
My Family Health Portrait 3.0 Resource
The My Health Family Portrait tool can help you map out your family health history. Available online, this tool is simple and easy to use. You may find this tool to be useful for communicating this important information to your health care providers.
My First Visit to a Neurologist
In retrospect, I learned a lot from my first visit to a neurologist about how to be better prepared for future visits to the neurologist and to other physicians that I would be referred to see.
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