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My Family Health Portrait 3.0 Resource
The My Health Family Portrait tool can help you map out your family health history. Available online, this tool is simple and easy to use. You may find this tool to be useful for communicating this important information to your health care providers.
My First Visit to a Neurologist
In retrospect, I learned a lot from my first visit to a neurologist about how to be better prepared for future visits to the neurologist and to other physicians that I would be referred to see.
Neurology Now Magazine
Neurology Now, a magazine published by the American Academy of Neurology, and its companion website provide readers with accurate and readable articles about a variety of neurological diseases, including neuromuscular disease.
Neuromuscular Disease and Spiritual Journaling
Recently, most of my journaling has taken the form of spiritual journaling. I have found this type of journaling to be beneficial to my ability to cope and thrive despite neuromuscular disease. Along with emotional and psychological benefits, journaling also has important health benefits.
Neuromuscular Disease, Darkness, and Balance
As we waited for the fireworks to begin, my mind wandered to the walk back to our car. I wondered if I would trip or fall. It would be completely dark by then, and most of the walk would be over uneven ground.
Neuromuscular Diseases Weekly Newsletter
If you want to know when new articles are posted to the Neuromuscular Diseases site, the Neuromuscular Diseases Weekly Newsletter is for you! This article explains what will be in the newsletter and how to sign up.
Neuropathy and Daily Foot Care
With correct foot care and regular inspection, I can minimize problems and keep my feet as healthy as possible. If you have neuropathy, make sure to speak with your physician about the proper care of your feet.
Newborn Screening and Neuromuscular Disease
As diagnosis and treatment protocols become more advanced, newborn screening will likely become increasingly possible for neuromuscular disease. As these advances are made, ethical and practical decisions regarding newborn screening for neuromuscular disease will need to be made.
Newborn Screening and Pompe Disease Update
Recently, the U.S. Discretionary Advisory Committee on Heritable Disorders in Newborns and Children recommended that Pompe disease be added to the Recommended Uniform Screening Panel.
Newborn Screening Saves Lives Reauthorization Act
The Newborn Screening Saves Lives Reauthorization Act (H.R. 1281/S. 1417) was recently passed into law. This Act reauthorizes federal programs related to newborn screening.
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