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Clinical Trials and Neuromuscular Disease
Clinical trials involve experimental research in order to find more effective treatments and/or cures for disease. While neuromuscular disease cannot yet be cured, ongoing clinical trials (also called interventional studies) provide hope.
Classical Stretch Workout Review
Wondering how I could I get a good workout with non-impact exercise, I found one of my favorite options on public television – a 30-minute exercise program called Classical Stretch.
Charcot-Marie-Tooth Association Circle of Friends
I have a confession to make – I have no practical experience in fundraising. I have never put together a fundraiser on my own and find the task daunting. Recently I ventured into the fundraising arena in one of the simplest ways possible, through starting a Circle of Friends with the CMTA.
Charcot Marie Tooth Disease (CMT)
Learn about the neuromuscular disease Charcot Marie Tooth Disease, the most common form of hereditary neuropathy.
CaringBridge Health Network Resource
CaringBridge offers a privacy protected social network community for individuals experiencing health issues such as neuromuscular disease. This nonprofit organization also offers the SupportPlanner calendar to help the family and friends coordinate care for that individual.
Book Review of Peripheral Neuropathy
What do numbness, shooting, difficulty with balance loss of muscle strength, and loss of bladder control all have in common? Each of these can be symptoms of peripheral neuropathy, as explained in the book Peripheral Neuropathy: When the Numbness, Weakness, and Pain Won’t Stop by Norman Latov.
Balance and Neuromuscular Disease
While everyone knows about the “five senses” – sight, hearing, smell, taste, touch – little attention is paid to another of important sense, the sense of balance, unless problems develop. Many of the neuromuscular diseases affect balance.
At an MDA Lock-Up
I spent part of my day recently “locked-up.” No, not in a real jail, but with all of the “jailbirds” participating in a local Muscular Dystrophy Association (MDA) Lock-Up. While raising money, participants also raise awareness of neuromuscular disease and MDA programs.
Andreas and His CMT Challenge
Although Andreas Johansson suffers from the progressive neuromuscular disease Charcot Marie Tooth (CMT), he has not let that stop him from pursuing his dreams. Coming to the United States from Sweden, he embarked upon a trek across the U.S. on an EliptiGO, a self-powered eliptical style scooter.
Amotrophic Lateral Sclerosis
Amotrophic Lateral Sclerosis (ALS) is one of the motor neuron diseases. It affects the muscles of the legs and arms, throat, and mouth, and eventually involves all of the voluntary muscles causing paralysis. The muscles involved in eating and respiration become involved as the disease progresses.
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