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Neuropathy and Daily Foot Care
With correct foot care and regular inspection, I can minimize problems and keep my feet as healthy as possible. If you have neuropathy, make sure to speak with your physician about the proper care of your feet.
New Balance WW928 Shoe Review
Finding the right shoe to accommodate my needs is not easy. Currently, the shoe that I most often wear is a pair of extra-depth walking shoes made by New Balance (model WW929).
Newborn Screening and Neuromuscular Disease
As diagnosis and treatment protocols become more advanced, newborn screening will likely become increasingly possible for neuromuscular disease. As these advances are made, ethical and practical decisions regarding newborn screening for neuromuscular disease will need to be made.
Newborn Screening and Pompe Disease Update
Recently, the U.S. Discretionary Advisory Committee on Heritable Disorders in Newborns and Children recommended that Pompe disease be added to the Recommended Uniform Screening Panel.
Newborn Screening Saves Lives Reauthorization Act
The Newborn Screening Saves Lives Reauthorization Act (H.R. 1281/S. 1417) was recently passed into law. This Act reauthorizes federal programs related to newborn screening.
Obstructive Sleep Apnea and Neuromuscular Disease
Weakened respiratory and upper airway muscles caused by neuromuscular disorder can cause insufficient breathing during sleep in both adults and children, leading to increased risk of obstructive sleep apnea (OSA). During obstructive sleep apnea, a person has reduced air flow or stops breathing.
Obtaining a Handicapped Parking Permit
This year when I asked about receiving a handicapped parking permit, I received paperwork for a permanent placard. Find out more about who qualifies for a handicapped parking permit and how to obtain one if you do.
Online College and Neuromuscular Disease
The availability of online learning courses for college students has greatly increased in the past decade. Online learning can provide easily accessible college education for students with neuromuscular disease and other types of disability.
Orthotic Management of CMT Resource Review
This special issue of Lower Extremity Review, Orthotic management of CMT: Dynamic solutions for active lifestyles, covers a variety of topics related to proper orthotics and bracing for individuals with Charcot Marie Tooth (CMT).
Performance Anxiety and Advocacy
Increasingly, I have opportunities to speak to others about neuromuscular disease. In the past, I sometimes experience performance anxiety before or during speaking, but I have been learning to manage my stage fright.
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