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Research Registries and Neuromuscular Disease
Enrolling in a registry specific to neuromuscular disease will help individuals to be informed about clinical research regarding a specific disease or condition. In turn, disease registries will also aid researchers looking for qualified individuals to participate in research protocols.
Resilience - Bending Not Breaking
I wish to be resilient, like these pine trees. I have faced trials and difficulties in the past, and will continue to further problems in the future. These include (but certainly not limited to) diagnosis with the neuromuscular disease Charcot Marie Tooth. The nature of CMT requires resilience.
Resilience and Optimism
Research has shown that people can learn to be resilient, to face adversity well, as my father did after having a stroke. As I face of my own diagnosis of neuromuscular disease, I claim these qualities for myself.
Respecting My Own Physical Limitations
When I fail to respect my physical limitations and rely on my own strength, I can easily over to it, and even hurt myself. When I respect the limitations that neuromuscular disease causes me, I avoid hurting myself, and, ultimately, can accomplish more.
Roussy-Levy Syndrome affects the peripheral nervous system. Distinctive characteristics of this variant of CMT include tremors (rhythmic shaking) in the hands and arms and unsteadiness of gait (gait ataxia).
Scoliosis and Neuromuscular Disease
Scoliosis, a sideways curvature of the spine, is a common problem for individuals with neuromuscular disease. Depending on severity, scoliosis can prevent the chest from expanding fully, interfering with the ability to breath. Scoliosis can also cause pain and functional difficulties.
Seated Tai Chi for Arthritis DVD Review
Seated Tai Chi for Arthritis: 6 lessons with Dr. Paul Lam, is a DVD exercise program led by Dr. Paul Lam. This DVD provides detailed teaching and practice with a seated Tai Chi routine developed for individuals with arthritis, suitable for many individuals with neuromuscular disease.
As area businesses again blossomed with green and gold Shamrock’s during February and March of 2014, I was again asked by my regional MDA office to act as a Shambassador. My duties would include visiting area businesses that participate in the MDA Shamrocks program to say thank you.
Sleep and Neuromuscular Disease Quiz
Test your knowledge about sleep. You can now take another new quiz, the Sleep and Neuromuscular Disease Quiz. You will find all the answers you need to answer this quiz in the articles Sleep and Neuromuscular Disease and What Happens When You Sleep? on the Neuromuscular Diseases site.
Sleeping Disorders in Neuromuscular Disease
If you have a neuromuscular disease, getting a good night of sleep may be difficult. Some research has suggested that as many as 40% of those with neuromuscular disease suffer from a sleeping disorder. Learn about sleeping disorders in those with neuromuscular disease.
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