Going through airport security checkpoints can be daunting, especially when mobility issues make assistive devices necessary. Learn about how the Transportation Security Administration (TSA) has anticipated these needs and has made provisions for screening individuals with mobility issues.

Acid Maltease Disease (AMD), which is also called Pompe Disease, leads to progressive weakness of the mucles in the hips, upper legs, upper arms, and respiratory system. The infantile onset form also affects the muscles of the heart.

Polling places were not always easily accessible to those with mobility issues or other disabilities. Today, however, federal laws require that polling places be accessible. As member of the neuromuscular disease community, we must make sure our voices will be heard through casting our votes.

Overall, Walt Disney World’s Magic Kingdom was accessible, and Guest Services was helpful. The Guest Assistance Pass helped me to reduce waiting in lines. The park did require a great deal of walking and standing, however, and my comfort would have been greatly increased had I used a wheelchair.

The Abilities Expo organization holds events across the U.S.A. Admission to the Abilities Expo is free. Take the opportunity to learn about the many products, services, and non-profit organizations that serve those with physical challenges, including those with neuromuscular disease.

The Documentary 39 Pounds of Love provides viewers a rare glimpse at a life well lived despite severe disability. This documentary follows the cross-country travels of Ami Ankilewitz, a 34 year old man with a rare form of the neuromuscular disease SMA/2 (spinal muscular atrophy).

No, life is not fair: however, the more I focus on what I perceive others have that I do not have , the more unhappy and envious I become. I could easily allow myself to lose my joy. My antidote comes from focusing on prayer and gratitude to God, most often through my journaling.