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Pes Planus and Neuromuscular Disease
Pes planus (flat foot, fallen arch) refers to an abnormally flattened arch. When standing, the entire foot will touch the floor. Pes planus is sometimes observed in individuals with Charcot Marie Tooth (CMT) and other neuromuscular diseases, but not as often as pes cavus (high arch) is observed.
Physical Therapy and Neuromuscular Disease
Physical therapy can be useful for many with neuromuscular disease in maintaining physical functioning as much as possible, leading to improved quality of life. Those interested should consult with their physician to determine if physical therapy would be beneficial.
Pole Walking and Neuromuscular Disease
With the weather turning nicer, I get outside to walk more often. Walking for exercise has been recommended to me by my physician, and is often recommended to those with various types neuromuscular disease. About a year ago, I discovered the benefits of using walking poles while walking.
Pompe Disease, more formally known as Acid Maltease Deficiency (AMD), leads to progressive weakness of the muscles in the hips, upper legs, upper arms, and respiratory system. The infantile onset form also affects the muscles of the heart.
I realized after a couple of days of feeling irritable and snapping at my family that I was having more than just an attitude problem -- I was having a gratitude problem. I had forgotten how much I have to be grateful. Instead, I was focusing on complaints and problems.
Quizzes About Neuromuscular Disease
Try the six quizzes related to the Neuromuscular Diseases site, including the newest, the Neuromuscular Disease and the Feet Quiz. Quizzes give you a chance to test your knowledge in important areas that affect those with neuromuscular disease. Plus, they are fun and you just might learn something
Reflections of a Peacemaker Book Review
Reflections of a Peacemaker: A Portrait Through Heartsongs contains 250 previously unpublished poems by Mattie Stepanek, including his final poem. Written between the ages 3 and 13, some of the poems were funny, some were sad, and all were insightful and heartbreakingly honest.
Research Registries and Neuromuscular Disease
Enrolling in a registry specific to neuromuscular disease will help individuals to be informed about clinical research regarding a specific disease or condition. In turn, disease registries will also aid researchers looking for qualified individuals to participate in research protocols.
Resilience - Bending Not Breaking
I wish to be resilient, like these pine trees. I have faced trials and difficulties in the past, and will continue to further problems in the future. These include (but certainly not limited to) diagnosis with the neuromuscular disease Charcot Marie Tooth. The nature of CMT requires resilience.
Resilience and Optimism
Research has shown that people can learn to be resilient, to face adversity well, as my father did after having a stroke. As I face of my own diagnosis of neuromuscular disease, I claim these qualities for myself.
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