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g Neuromuscular Diseases Site

BellaOnline's Neuromuscular Diseases Editor

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 F E A T U R E   A R C H I V E  

Archive by Article Title | Archive by Date

Stress, Humor, and Neuromuscular Disease
While neuromuscular disease is not funny, many of the situations that people find themselves in are funny. Seeing the humor in our struggles provides relief from stress and improve physical and emotional health.

Support Groups and Neuromuscular Disease
If you do not yet belong to a support group, I strongly urge you to find a support group in your area or online. The relationships that you build will help you to live, cope, and even thrive despite neuromuscular disease.

Suzanne Andrews Functional Fitness DVDs Review
The Functional Fitness DVD series, created by occupational therapist Suzanne Andrews, provides a series of videos aimed at increasing functional fitness for those experiencing health issues. For purposes of this review, her Arthritis and Pain Free Back & Neck DVDs were sampled.

T’ai Chi beginning practice DVD Review
When neuromuscular disease began to cause increased difficulty with my feet, my physician recommended Tai Chi as a healthy low-impact form of exercise. I purchased a copy of T’ai Chi beginning practice with David –Dorian Ross to teach me the basic movements of T’ai Chi.

Tai Chi for Arthritis DVD Review
Tai Chi for Arthritis: 12 lessons with Dr. Paul Lam is a gentle and effective Tai Chi program. This two DVD set provides detailed teaching and practice for a Tai Chi routine developed for those with arthritis. This DVD will also be beneficial for many individuals with neuromuscular disease.

Thank You Jerry Lewis
For more than 50 years, Jerry Lewis tirelessly served the Muscular Dystrophy Association (MDA) and the neuromuscular diseases community, raising both funds and awareness. The magnitude of Lewis’ service cannot be denied and will not be forgotten.

That All May Worship Resource Review
Too often, individuals with disability, including neuromuscular disease , have been excluded from religious participation. That All May Worship: An Interfaith Welcome to People with Disabilities will be useful towards eliminating barriers to access and making places of worship truly inclusive.

The CMT Survivor's Guide
The Charcot Marie Tooth Association (CMTA) recently published a new resource for individuals who have been diagnosed with Charcot Marie Tooth (CMT) titled CMT Survivor’s Guide: a resource guide for living life your way.

The Rare Clinical Diseases Research Network
According to the Rare Clinical Diseases Research Network (RDCRN) website, the purpose of the RDCRN is to increase collaboration between the research and treatment efforts of the scientists and clinicians working with many different types of rare disease.

The Sound of a Wild Snail Eating Book Review
The Sound of a Wild Snail Eating, by Elisabeth Tova Bailey, recounts Ms. Bailey's observations of and relationship with a snail. A friend brought her the snail while she was incapacitated by a mysterious neuromuscular disease that left her unable to walk, sit, or care for herself.

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