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U.S. Legislative Update for Neuromuscular Diseases
Currently, important legislation affecting the neuromuscular disease community in the U.S. remains under consideration. As members of this community, it is important to remain informed about this legislation and to act in support of any legislation that is important to you.
Using a Cane
"Your cane looks good on you,” a friend recently told me. Surprised, I searched his face to determine if he was joking. Since injuring my hip recently, I have used a cane when necessary. Delivered to my hospital room, the cane is not fancy or decorative, but basic and functional.
Visit to an MDA Clinic
Across the USA and Puerto, the MDA provides treatment at 200 clinics specializing in neuromuscular disease. These clinics serve individuals with over 40 types of neuromuscular disease. Through registering with their clinics, you too can receive world class medical care by a team of specialists.
Visit to an MDA Summer Camp
This year, I received an invitation to visit the MDA Summer Camp in the Grand Rapids, Michigan area on their visitor’s day. The MDA Summer Camps offer many different fun camp activities modified for the participation and enjoyment of children and teenagers who have physical disabilities.
Walking for Fitness with Neuromuscular Disease
For those of you with neuromuscular disease who are still ambulatory, walking may be one of the safest forms of exercise for you. Check with your physician to find out if walking would benefit you and what type of bracing or equipment might best assist you.
Water Aerobics with Neuromuscular Disease
When my physician told me to consider non-impact exercise to protect my feet from further deterioration, I resisted at first. Non-impact exercises? How could I get a good workout with non-impact exercise? One of the options I have found includes water aerobics and swimming.
What are Ankle Foot Orthosis (AFOs)?
Often called an AFO, the term Ankle Foot Orthosis refers to a brace worn on the leg over the calf and foot. The brace supports the foot and ankle, holding the correct position and preventing foot drop. This type of brace is also sometimes called a foot drop brace.
What are peripheral nerves?
Having a basic understanding of the nerve cells of the peripheral nervous system can improve understanding of neuromuscular disease. While the various neuromuscular diseases differ in their cause and symptoms, each in some way affects the muscles and the nerves of the peripheral nervous system.
What are the divisions of the nervous system?
Understanding the divisions of the nervous system can help one to improve understanding of neuromuscular disease. The nervous system can be divided into two broad categories – the central and peripheral nervous systems. Neuromuscular diseases directly affect the peripheral nervous system.
What Happens During Sleep?
Sleep is much more than the absence of being awake. Every night during healthy sleep, your brain goes through five stages of sleep. Without enough sleep, your body and brain cannot get the rest needed to maintain health and your quality of life.
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