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Social Support and Neuromuscular Disease
This time I have determined to handle my health difficulties differently than I before. Because I opened up to others, I found the strength that I need to handle my diagnosis of Charcot Marie Tooth in an emotionally health way. In turn, I have been able to help others.
Recently, much of my journaling has taken the form of spiritual journaling. I have found this to be a valuable practice to help me cope with the neuromuscular disease, remember my many blessings, and strengthen my walk with G-d. Journaling has also been found to have important health benefits.
Stress Expectation and Change
Broadly defined, there are two types of problems. There are problem that can be changed, fixed, improved, or made better, and problems that cannot. Spending time focusing on unfixable problems can become a major source of stress.
Stress, Humor, and Neuromuscular Disease
While neuromuscular disease is not funny, many of the situations that people find themselves in are funny. Seeing the humor in our struggles provides relief from stress and improve physical and emotional health.
Support Groups and Neuromuscular Disease
If you do not yet belong to a support group, I strongly urge you to find a support group in your area or online. The relationships that you build will help you to live, cope, and even thrive despite neuromuscular disease.
Suzanne Andrews Functional Fitness DVDs Review
The Functional Fitness DVD series, created by occupational therapist Suzanne Andrews, provides a series of videos aimed at increasing functional fitness for those experiencing health issues. For purposes of this review, her Arthritis and Pain Free Back & Neck DVDs were sampled.
T’ai Chi beginning practice DVD Review
When neuromuscular disease began to cause increased difficulty with my feet, my physician recommended Tai Chi as a healthy low-impact form of exercise. I purchased a copy of T’ai Chi beginning practice with David –Dorian Ross to teach me the basic movements of T’ai Chi.
Tai Chi for Arthritis DVD Review
Tai Chi for Arthritis: 12 lessons with Dr. Paul Lam is a gentle and effective Tai Chi program. This two DVD set provides detailed teaching and practice for a Tai Chi routine developed for those with arthritis. This DVD will also be beneficial for many individuals with neuromuscular disease.
Tales of a Shambassador
As area businesses again blossomed with green and gold Shamrock’s during February and March of 2015, I was again asked by my regional MDA office to act as a Shambassador. My duties include visiting area businesses that participate in the MDA Shamrocks program to say thank you.
Thank You Jerry Lewis
For more than 50 years, Jerry Lewis tirelessly served the Muscular Dystrophy Association (MDA) and the neuromuscular diseases community, raising both funds and awareness. The magnitude of Lewis’ service cannot be denied and will not be forgotten.
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