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Visit to an MDA Summer Camp
This year, I received an invitation to visit the MDA Summer Camp in the Grand Rapids, Michigan area on their visitor’s day. The MDA Summer Camps offer many different fun camp activities modified for the participation and enjoyment of children and teenagers who have physical disabilities.
Walking for Fitness with Neuromuscular Disease
For those of you with neuromuscular disease who are still ambulatory, walking may be one of the safest forms of exercise for you. Check with your physician to find out if walking would benefit you and what type of bracing or equipment might best assist you.
Water Aerobics with Neuromuscular Disease
When my physician told me to consider non-impact exercise to protect my feet from further deterioration, I resisted at first. Non-impact exercises? How could I get a good workout with non-impact exercise? One of the options I have found includes water aerobics and swimming.
What are Ankle Foot Orthosis (AFOs)?
Often called an AFO, the term Ankle Foot Orthosis refers to a brace worn on the leg over the calf and foot. The brace supports the foot and ankle, holding the correct position and preventing foot drop. This type of brace is also sometimes called a foot drop brace.
What are peripheral nerves?
Having a basic understanding of the nerve cells of the peripheral nervous system can improve understanding of neuromuscular disease. While the various neuromuscular diseases differ in their cause and symptoms, each in some way affects the muscles and the nerves of the peripheral nervous system.
What are the divisions of the nervous system?
Understanding the divisions of the nervous system can help one to improve understanding of neuromuscular disease. The nervous system can be divided into two broad categories – the central and peripheral nervous systems. Neuromuscular diseases directly affect the peripheral nervous system.
What Happens During Sleep?
Sleep is much more than the absence of being awake. Every night during healthy sleep, your brain goes through five stages of sleep. Without enough sleep, your body and brain cannot get the rest needed to maintain health and your quality of life.
What is a 504 Plan?
Schools in the U.S. that receive federal funding must adhere to the provision in Section 504 of the federal Rehabilitation Act of 1973. Section 504 guarantees individuals with disabilities equal access to education as a civil right. Plans based on Section 504 are referred to as 504 Plans.
What is an IEP?
Students that qualify for special education must have a formal Individualized Education Program (IEP). The IEP specifies the support that a child with physical and/or cognitive disability needs to succeed in the least restrictive environment.
What is Ataxia?
The term ataxia refers to an inability to coordinate voluntary muscular movements involving the head, trunk, and/or limbs, affecting movement and balance and sometimes speech and/or eye movement. The primary symptom of the neuromuscular disease Friedreich’s ataxia is ataxia.
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