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Balance and Neuromuscular Disease
While everyone knows about the “five senses” – sight, hearing, smell, taste, touch – little attention is paid to another of important sense, the sense of balance, unless problems develop. Many of the neuromuscular diseases affect balance.
Balance, Darkness, and CMT
The sudden darkness in the movie theater caught me off guard, and, off balance, I could not walk. I found that I had to wait until my eyes adjusted to the dim light enough to aid my balance to begin walking again. Soon, however, I was headed up the steps and to my seat to enjoy the movie.
Bernadette Documentary Review
What would it be like to live with a progressive degenerative disease? The documentary Bernadette explores the answer to this question as it depicts the life of Bernadette Scarduzio, a young adult with the little known hereditary neuropathy Charcot Marie Tooth (CMT).
Book Review of Peripheral Neuropathy
What do numbness, shooting, difficulty with balance loss of muscle strength, and loss of bladder control all have in common? Each of these can be symptoms of peripheral neuropathy, as explained in the book Peripheral Neuropathy: When the Numbness, Weakness, and Pain Won’t Stop by Norman Latov.
Canine Companions for Independence
Canine Companions for Independence, a non-profit 503(c)(3) organization , trains and places assistance dogs. Their assistance dogs are trained to provide four different categories of help, including, service, facility, companion, and hearing.
CaringBridge Health Network Resource
CaringBridge offers a privacy protected social network community for individuals experiencing health issues such as neuromuscular disease. This nonprofit organization also offers the SupportPlanner calendar to help the family and friends coordinate care for that individual.
Challenged Athletes Foundation
The Challenged Athletes Foundation supports the athletic efforts of individuals with physical challenges. Rather than focusing on disability, this organization focuses on the abilities of athletes with physical challenges in order to create acceptance and respect.
Charcot Marie Tooth Disease (CMT)
Learn about the neuromuscular disease Charcot Marie Tooth Disease, the most common form of hereditary neuropathy.
Charcot-Marie-Tooth Association Circle of Friends
I have a confession to make – I have no practical experience in fundraising. I have never put together a fundraiser on my own and find the task daunting. Recently I ventured into the fundraising arena in one of the simplest ways possible, through starting a Circle of Friends with the CMTA.
Chiropractic Care and Neuromuscular Disease
Chiropractic care refers to a form of alternative medicine in which a chiropractor uses mechanical manipulation of the spine and other joints in the body. Chiropracty has been found to be useful in pain reduction for individuals with neuromuscular disease by researchers.
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