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Clinical Trials for Neuromuscular Disease
Clinical trials involve experimental research in order to find more effective treatments and/or cures for disease. By becoming involved in research, whether as a participant, or through fundraising and advocacy, you can help to support ongoing research efforts in neuromuscular disease.
CMT and Footwear
The right shoes cannot stop the progression of CMT. They can, however, provide better stability, balance, and comfort. This can help those of us with CMT keep walking as well as possible for as long as possible.
CMT and Physical Therapy Training Resource
Because Charcot Marie Tooth is relatively rare, many physical therapists do not have much training or experience with CMT. The Charcot Marie Tooth Association (CMTA)and Physiotherapy Associates, Inc. (PTA) have partnered to provide a resource for physical therapists and their patients.
CMT Awareness Month 2014
Soon after last year’s successful CMT Awareness Month finished, organizers of the CMT Awareness Month 2014 began planning for the 2014 event. Through this event, the Charcot Marie Tooth Association (CMTA) educates the public and raises awareness about the neuromuscular disease Charcot Marie Tooth.
CMT, Grief, and Healing
Under the right circumstances, when I am not fatigued, when I wear orthortic bracing and when the ground level and firm, I walk well. Perhaps a casual observer would not know that I have any difficulties. It turns out, however, that I no longer walk well on the beach.
Coloring Pages Featuring Children with Disability
A variety of free downloadable coloring booklets, pages, and activities for young children can be found on the internet. This article lists some of the websites with coloring pages and booklets available that highlight children with disabilities including mobility issues.
Congenital Muscle Disease Registries
Recently, several new registries for individuals with various forms of congenital muscle disease have been started. These registries create databases in order to improve awareness, research effectiveness, and communication. Participation is voluntary and confidentiality will be protected.
Contacting the White House
Did you know that if you can contact the White House directly? If you are a U.S. citizen, making your voice heard to influence governmental decisions is your right and responsibility. Contacting the President of the United States at the White House is one of the ways that you can do this.
Contractures and Neuromuscular Disease
Contractures occur in the joints of many individuals with neuromuscular disease. These include muscular dystrophy, myopothy, Charcot Marie Tooth, ALS, and Friedrich’s ataxia. Contractures cause deformity in the affected joint, often leading to pain and functional difficulties.
Coping with Chronic Neuropathy DVD Review
In the DVD Coping with Chronic Neuropathy, Eugene Richardson brings uncommon understanding of neuropathy from his perspective as a long-term neuropathy patient, professional counselor, and patient advocate. He also displays humor and hope while covering this difficult topic.
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