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CMT Awareness Month 2015
Recently, I had the opportunity to speak over the telephone with Bethany Meloche. During our conversation we discussed her history of diagnosis, her involvement with the CMTA, and the Charcot Marie Tooth Awareness Month 2015.
CMT Exercise Video Series from the CMTA
The Charcot Marie Tooth Association (CMTA), has been producing a series of short instructional videos demonstrating physical therapy exercises for individuals with Charcot Marie Tooth. Currently 4 of these videos are available at no cost at the CMTA website, with an additional 3 videos planned.
CMT, Grief, and Healing
Under the right circumstances, when I am not fatigued, when I wear orthortic bracing and when the ground level and firm, I walk well. Perhaps a casual observer would not know that I have any difficulties. It turns out, however, that I no longer walk well on the beach.
Coloring Pages Featuring Children with Disability
A variety of free downloadable coloring booklets, pages, and activities for young children can be found on the internet. This article lists some of the websites with coloring pages and booklets available that highlight children with disabilities including mobility issues.
Congenital Muscle Disease Registries
Recently, several new registries for individuals with various forms of congenital muscle disease have been started. These registries create databases in order to improve awareness, research effectiveness, and communication. Participation is voluntary and confidentiality will be protected.
Contacting the White House
Did you know that if you can contact the White House directly? If you are a U.S. citizen, making your voice heard to influence governmental decisions is your right and responsibility. Contacting the President of the United States at the White House is one of the ways that you can do this.
Contractures and Neuromuscular Disease
Contractures occur in the joints of many individuals with neuromuscular disease. These include muscular dystrophy, myopothy, Charcot Marie Tooth, ALS, and Friedrich’s ataxia. Contractures cause deformity in the affected joint, often leading to pain and functional difficulties.
Coping with Chronic Neuropathy DVD Review
In the DVD Coping with Chronic Neuropathy, Eugene Richardson brings uncommon understanding of neuropathy from his perspective as a long-term neuropathy patient, professional counselor, and patient advocate. He also displays humor and hope while covering this difficult topic.
Coping With Grief Over Health Losses
When I first received a diagnosis with a neuromuscular disease, I went through a variety of emotions. Looking back, I recognize these emotions as part of the grieving process.
Coping with Shin Splints
Also known as tibial stress syndrome or exercise related leg pain, shin splints are caused by stress to the tibia (the shinbone) and the connective tissue between the muscle and tibia. This causes pain in the front of the lower leg and sometimes mild swelling.
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