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Disease Registries for Neuromuscular Disease
Disease registries have been formed to aid researchers searching for qualified individuals to participate as subjects in research protocols. Such research is needed to advance knowledge regarding the diagnosis and treatment of neuromuscular disease.
Dragon NaturallySpeaking Premium Product Review
Recently, I began to have more difficulty using my hands. Most noticeably, I find that I sometimes have difficulty typing accurately. I decided to try a voice recognition program called Dragon Naturally Speaking Premium, Version 11 from a company called Nuance. Read a review of this product.
Duchenne Muscular Dystrophy
Duchenne muscular dystrophy (DMD) is one of the nine types of muscular dystrophies. The muscular dystrophies are a group of degenerative genetic diseases affecting the voluntary, and sometimes involuntary, muscles. DMD is caused by a problem in the gene that produces a protein called dystrophin.
Easy Yoga for Arthritis DVD Review
While not specific to neuromuscular disease, the modifications and detailed instructions given in the exercise DVD Easy Yoga for Arthritis with Peggy Cappy: Yoga for the Rest of Us will make the yoga exercises demonstrated appropriate for many individuals with neuromuscular disease.
Easy Yoga for Easing Pain DVD Review
Since injuring my hip, my physicians have encouraged me to replace even low-impact exercise with very low- to non-impact exercise. While recovering, the gentle yoga exercises found on the DVD Easy Yoga for Easing Pain have helped me to effectively exercise with undue strain or re-injury.
Educational Webinars from the CMTA
The Charcot Marie Tooth Association (CMTA) now offers free educational webinars featuring top experts. Topics include a variety of topics related to diagnosis, treatment, and living with Charcot Marie Tooth (CMT). Make sure to view these important educational webinars.
Experiencing Foot Drop
Yesterday, I tripped over my own toes. This actually happens fairly often to me. One of the effects of Charcot Marie Tooth (CMT), the neuromuscular disease that I have been diagnosed with, is called foot drop.
Extraordinary Measures Movie Review
The movie Extraordinary Measures was inspired by the true story of a family’s involvement in the search for a treatment for the neuromuscular disease Acid Maltese Deficiency (Pompe disease). This movie shows the power of hope and the human spirit to overcome seemingly insurmountable obstacles.
Falling on Ice
As I stepped out of my car, both of feet slipped out from under me. What I had thought was a puddle turned out to be black ice. Unable to break my fall, I landed hard on my already injured left hip and on my left wrist.
Filling the Boot for MDA
You may see fire-fighters collecting funds at local parades and events. When you see your local firefighters campaigning to raise funds for the MDA, make sure to say thank you. Let them know how the MDA has helped you and your family. And, make sure to help fill the boot!
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