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Experiencing Foot Drop
Yesterday, I tripped over my own toes. This actually happens fairly often to me. One of the effects of Charcot Marie Tooth (CMT), the neuromuscular disease that I have been diagnosed with, is called foot drop.
Extraordinary Measures Movie Review
The movie Extraordinary Measures was inspired by the true story of a family’s involvement in the search for a treatment for the neuromuscular disease Acid Maltese Deficiency (Pompe disease). This movie shows the power of hope and the human spirit to overcome seemingly insurmountable obstacles.
Fill the Boot for the MDA
When you see your local firefighters campaigning to raise funds for the MDA through Fill-the-Boot, make sure to say thank you. Let them know how the MDA has helped you and your family. And, make sure to help fill the boot!
Free Informational Resources from the MDA
The Muscular Dystrophy Association (MDA) offers a variety of free resources about neuromuscular disease. Updated regularly, these resources cover a wide variety of topics related to neuromuscular disease. Many MDA publications are available in Spanish as well.
Friedreich’s ataxia (FA) refers to a form of neuromuscular disease in which ataxia is the primary symptom. Bone irregularities, bladder control problems, and sensory problems can also occur. This disease was first described in 1863 by Nikolaus Friedreich.
Fun and Games at the Neuromuscular Diseases Site
While dealing with neuromuscular disease is not fun, that does not mean that people with neuromuscular disease do not like to have fun! That is why, with the help of BellaOnline.com, I have created several entertaining word games and puzzles for you to play at the Neuromuscular Diseases site.
Genetic Testing - To Test or Not to Test?
Many neuromuscular disease diagnoses can now be confirmed by genetic testing. But many facing the decision to test or not to test may have questions about whether or not to pursue genetic testing. These questions may become even more complicated when children are involved.
Giving an Honest Answer to “How are You?”
I desire close, genuine relationships. Authentic sharing of my truth, even when I experience pain, must be part of that. I cannot foster close relationships while hiding behind empty words such as “fine” when someone asks how I am.
Gratitude and Neuromuscular Disease
Gratitude, an attitude of thankfulness, does more than benefit the receiver. In individuals with neuromuscular disease, keeping a gratitude journal was found to improve energy, positive mood, feelings of connectedness, positive rating of one’s own life, and even sleep duration and quality.
Gratitude Works! Book Review
Highly recommended, Gratitude Works! A 21-Day Program for Creating Emotional Prosperity, written by Robert Emmons, Ph.D., overviews the body of research regarding the practice of gratitude. This book also lays out a three week program for starting a gratitude journal.
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