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Giving an Honest Answer to “How are You?”
I desire close, genuine relationships. Authentic sharing of my truth, even when I experience pain, must be part of that. I cannot foster close relationships while hiding behind empty words such as “fine” when someone asks how I am.
Gratitude and Neuromuscular Disease
Gratitude, an attitude of thankfulness, does more than benefit the receiver. In individuals with neuromuscular disease, keeping a gratitude journal was found to improve energy, positive mood, feelings of connectedness, positive rating of one’s own life, and even sleep duration and quality.
Gratitude Works! Book Review
Highly recommended, Gratitude Works! A 21-Day Program for Creating Emotional Prosperity, written by Robert Emmons, Ph.D., overviews the body of research regarding the practice of gratitude. This book also lays out a three week program for starting a gratitude journal.
Hammer Toes and Neuromuscular Disease
Technically referred to as hammer toe deformity, hammer toe is caused by contractures in the joints of the toe. Hammertoe is most common in the second toe, but can affect all of the four smaller toes. The affected toe or toes turn under into a claw-like position.
Handling Grief Over Health Losses
When diagnosed with health problems such as neuromuscular disease, people often experience grief. Learn about the five stages of grief and how they apply to grief over health problems.
Healing Yoga for Aches and Pains DVD Review
Yoga, a low-impact exercise, has been recommended for individuals with neuromuscular disease. While not specific to neuromuscular disease, the gentle yoga demonstrated in the DVD Healing Yoga for Aches and Pains would be appropriate and beneficial for many individuals with neuromuscular disease.
Hip Problems and Neuromuscular Disease
Until my recent injury, I had not considered the possibility that Charcot Marie Tooth could affect my hips. Neuromuscular disease can be a significant risk factor in the development of problems of the hip, however, including structural abnormalities, hip displacement, and arthritis.
Influenza and Neuromuscular Disease
Individuals with neuromuscular disease are considered to be at high risk for complications from influenza such as pneumonia or bronchitis, hospitalization, and more rarely, death. Make sure to talk to your physician about influenza and ask if you should receive vaccination against the flu.
Inherited Neuropathies Consortium
Registering with the ICN was quick and easy. If you have CMT, consider registering with the INC so that you can be part of the search for more effective treatments and cures for the inherited neuropathies.
Interactive Games for Young Children
Everyone loves to play, including babies and young children with disabilities that limit their mobility. Interactive movement games engage young children, gently exercise their muscles, teach them about social interactions, and help you to have fun together. Get started with a couple of examples.
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