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Friedreich’s ataxia (FA) refers to a form of neuromuscular disease in which ataxia is the primary symptom. Bone irregularities, bladder control problems, and sensory problems can also occur. This disease was first described in 1863 by Nikolaus Friedreich.
Fun and Games at the Neuromuscular Diseases Site
While dealing with neuromuscular disease is not fun, that does not mean that people with neuromuscular disease do not like to have fun! That is why, with the help of BellaOnline.com, I have created several entertaining word games and puzzles for you to play at the Neuromuscular Diseases site.
Genetic Disorders Sourcebook Review
Overall, the Genetic Disorders Sourcebook is a useful reference. It contains much valuable information in a well-researched and easy to read format for individuals with inherited neuromuscular disease and/or other inherited disorders.
Genetic Testing - To Test or Not to Test?
Many neuromuscular disease diagnoses can now be confirmed by genetic testing. But many facing the decision to test or not to test may have questions about whether or not to pursue genetic testing. These questions may become even more complicated when children are involved.
Giving an Honest Answer to “How are You?”
I desire close, genuine relationships. Authentic sharing of my truth, even when I experience pain, must be part of that. I cannot foster close relationships while hiding behind empty words such as “fine” when someone asks how I am.
Gratitude and Neuromuscular Disease
Gratitude, an attitude of thankfulness, does more than benefit the receiver. In individuals with neuromuscular disease, keeping a gratitude journal was found to improve energy, positive mood, feelings of connectedness, positive rating of one’s own life, and even sleep duration and quality.
Gratitude Works! Book Review
Highly recommended, Gratitude Works! A 21-Day Program for Creating Emotional Prosperity, written by Robert Emmons, Ph.D., overviews the body of research regarding the practice of gratitude. This book also lays out a three week program for starting a gratitude journal.
Hammer Toes and Neuromuscular Disease
Technically referred to as hammer toe deformity, hammer toe is caused by contractures in the joints of the toe. Hammertoe is most common in the second toe, but can affect all of the four smaller toes. The affected toe or toes turn under into a claw-like position.
Healing Yoga for Aches and Pains DVD Review
Yoga, a low-impact exercise, has been recommended for individuals with neuromuscular disease. While not specific to neuromuscular disease, the gentle yoga demonstrated in the DVD Healing Yoga for Aches and Pains would be appropriate and beneficial for many individuals with neuromuscular disease.
Hip Problems and Neuromuscular Disease
Until my recent injury, I had not considered the possibility that Charcot Marie Tooth could affect my hips. Neuromuscular disease can be a significant risk factor in the development of problems of the hip, however, including structural abnormalities, hip displacement, and arthritis.
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