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Influenza and Neuromuscular Disease
Individuals with neuromuscular disease are considered to be at high risk for complications from influenza such as pneumonia or bronchitis, hospitalization, and more rarely, death. Make sure to talk to your physician about influenza and ask if you should receive vaccination against the flu.
Influenza Season 2014-2015
Influenza, caused by a virus, primarily affects the respiratory system. Influenza is also known as the flu, seasonal flu, or respiratory flu. While the flu vaccine will not protect against all cases of influenza, it does provide significant protection.
Inherited Neuropathies Consortium
Registering with the ICN was quick and easy. If you have CMT, consider registering with the INC so that you can be part of the search for more effective treatments and cures for the inherited neuropathies.
Interactive Games for Young Children
Everyone loves to play, including babies and young children with disabilities that limit their mobility. Interactive movement games engage young children, gently exercise their muscles, teach them about social interactions, and help you to have fun together. Get started with a couple of examples.
International Neuromuscular Disease Websites
People from all over the world suffer from neuromuscular disease, and need to find accurate, appropriate, and effective information, support, and services. This article lists some of the web-links to organizations that serve the worldwide neuromuscular diseases community.
Journal Writing and Neuromuscular Disease
While the benefits of personal writing have been well documented, some people find it difficult to get started. To help you, I have provided a few journaling prompts about the experience of having a neuromuscular disease to help you begin journaling.
Journaling for Wellness
Journaling can help you to reach greater self-awareness, process emotions, and improve your overall health and wellness. Find out about personal writing in this article.
Kayaking with Neuromuscular Disease
According to the American Canoe Association (ACA) and United States Canoe Association (USCA), kayaking and other paddle sports can be adapted to accommodate individuals with a wide range of physical disabilities.
Keeping a Gratitude Journal
As I have dealt with my diagnosis and symptoms of neuromuscular disease over the past few years, sometimes my emotions have given way to worry or despair. When I begin to despair, one of my most useful tools is prayer, often in the form of keeping a gratitude journal.
Learning through Neuromuscular Disease
Recently, I had the opportunity to speak on behalf of the Muscular Dystrophy Association to children walking to raise money. I found that I had much to tell these children, not just about neuromuscular disease and the MDA, but about coping and thriving despite life’s struggles.
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