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International Neuromuscular Disease Websites
People from all over the world suffer from neuromuscular disease, and need to find accurate, appropriate, and effective information, support, and services. This article lists some of the web-links to organizations that serve the worldwide neuromuscular diseases community.
Journal Writing and Neuromuscular Disease
While the benefits of personal writing have been well documented, some people find it difficult to get started. To help you, I have provided a few journaling prompts about the experience of having a neuromuscular disease to help you begin journaling.
Journaling for Wellness
Journaling can help you to reach greater self-awareness, process emotions, and improve your overall health and wellness. Find out about personal writing in this article.
Kayaking with Neuromuscular Disease
According to the American Canoe Association (ACA) and United States Canoe Association (USCA), kayaking and other paddle sports can be adapted to accommodate individuals with a wide range of physical disabilities.
Keeping a Gratitude Journal
As I have dealt with my diagnosis and symptoms of neuromuscular disease over the past few years, sometimes my emotions have given way to worry or despair. When I begin to despair, one of my most useful tools is prayer, often in the form of keeping a gratitude journal.
Legislative Advocacy and Neuromuscular Disease
Lately, I have become increasingly involved in legislative advocacy. These efforts regularly involve writing to my elected officials to raise awareness regarding issues such as research funding and legislation regarding quality of life issues for those with neuromuscular disease.
The hobby of “letterboxing” has been growing. It involves hiking and navigational skills, with the fun of finding a “treasure” at the end of the hike. Trails can be selected by level of difficulty and wheelchair accessibility, making this a great hobby for individuals with neuromuscular disease.
Like a Flower Grows Volume 2 Launch
Like a Flower Grows, Volume 2: Sixty New Meditations on Walking with Christ is being launched in print and ebook form. This book of devotions continues to explore Scripture and its relationship to everyday life, including coping with neuromuscular disease. It contains a bonus article about CMT.
Maintaining Self-esteem Despite Differences
Maintaining self-esteem despite the physical disabilities and differences caused by neuromuscular disease can enable one to make a difference in the world.
Managing Caregiving Stress
Caregiving stress arises from the emotional and physical challenges of providing caregiving. While caregiving for family member can be rewarding, caregivers often experience stress. Managing stress will benefit the well-being of both the caregiver and the care receiver.
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