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International Neuromuscular Disease Websites
People from all over the world suffer from neuromuscular disease, and need to find accurate, appropriate, and effective information, support, and services. This article lists some of the web-links to organizations that serve the worldwide neuromuscular diseases community.
Is Charcot Foot the Same as Charcot Marie Tooth?
Although Charcot Foot, also called Charcot’s arthropathy or neuroarthropathy, has some of the same symptoms as Charcot Marie Tooth, these two diseases have different causes. Careful diagnosis is required to receive the proper care for these two distinct diseases.
Journal Writing and Neuromuscular Disease
While the benefits of personal writing have been well documented, some people find it difficult to get started. To help you, I have provided a few journaling prompts about the experience of having a neuromuscular disease to help you begin journaling.
Journaling for Wellness
Journaling can help you to reach greater self-awareness, process emotions, and improve your overall health and wellness. Find out about personal writing in this article.
Kayaking with Neuromuscular Disease
According to the American Canoe Association (ACA) and United States Canoe Association (USCA), kayaking and other paddle sports can be adapted to accommodate individuals with a wide range of physical disabilities.
Keeping a Gratitude Journal
Give keeping a gratitude journal a try! You might just find that keeping a gratitude journal becomes an important tool for maintaining and increasing your joy and happiness.
Kyphosis in Neuromuscular Disease
Kyphosis is a type of abnormal spinal curvature that causes the spine to curve excessively, causing a bowing or rounding. This leads to a posture that appears to be slouching or ‘hunchbacked.’ Curvature in the spine in individuals with neuromuscular disease usually affects the whole spine.
Learning through Neuromuscular Disease
Recently, I had the opportunity to speak on behalf of the Muscular Dystrophy Association to children walking to raise money. I found that I had much to tell these children, not just about neuromuscular disease and the MDA, but about coping and thriving despite life’s struggles.
Legislative Advocacy and Neuromuscular Disease
Lately, I have become increasingly involved in legislative advocacy. These efforts regularly involve writing to my elected officials to raise awareness regarding issues such as research funding and legislation regarding quality of life issues for those with neuromuscular disease.
The hobby of “letterboxing” has been growing. It involves hiking and navigational skills, with the fun of finding a “treasure” at the end of the hike. Trails can be selected by level of difficulty and wheelchair accessibility, making this a great hobby for individuals with neuromuscular disease.
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