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Ice Bucket Challenge for ALS 2015
Last summer, the Ice Bucket Challenge raised much needed funding and awareness for ALS. According to the ALS Association and MDA, the Challenge is being extended again during August of 2015. Get involved!
Influenza and Neuromuscular Disease
Individuals with neuromuscular disease are considered to be at high risk for complications from influenza such as pneumonia or bronchitis, hospitalization, and more rarely, death. Make sure to talk to your physician about influenza and ask if you should receive vaccination against the flu.
Influenza Season 2015-2016
Influenza, caused by a virus, primarily affects the respiratory system. Influenza is also known as the flu, seasonal flu or respiratory flu. While the flu vaccine will not protect against all cases of influenza, it does provide significant protection.
Inherited Neuropathies Consortium
Registering with the ICN was quick and easy. If you have CMT, consider registering with the INC so that you can be part of the search for more effective treatments and cures for the inherited neuropathies.
Interactive Games for Young Children
Everyone loves to play, including babies and young children with disabilities that limit their mobility. Interactive movement games engage young children, gently exercise their muscles, teach them about social interactions, and help you to have fun together. Get started with a couple of examples.
International Clinical Trials Registry Platform
The World Health Organization (WHO) maintains an international registry of clinical trials. The International Clinical Trials Registry Platform (ICTRF) lets clinical researchers communicate their research efforts internationally through registering their clinical trials.
International Neuromuscular Disease Websites
People from all over the world suffer from neuromuscular disease, and need to find accurate, appropriate, and effective information, support, and services. This article lists some of the web-links to organizations that serve the worldwide neuromuscular diseases community.
Is Charcot Foot the Same as Charcot Marie Tooth?
Although Charcot Foot, also called Charcot’s arthropathy or neuroarthropathy, has some of the same symptoms as Charcot Marie Tooth, these two diseases have different causes. Careful diagnosis is required to receive the proper care for these two distinct diseases.
Journaling and Neuromuscular Disease
The benefits of personal writing have been well documented, but people find it difficult to get started. To help you, I have provided a few journaling prompts about the experience of having a neuromuscular disease to help you begin your journaling practice.
Journaling for Wellness
Journaling can help you to reach greater self-awareness, process emotions, and improve your overall health and wellness. Find out about personal writing in this article.
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