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g Neuromuscular Diseases Site

BellaOnline's Neuromuscular Diseases Editor

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 F E A T U R E   A R C H I V E  

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MDA's Free Public Webinar Series
Since 2010, the Muscular Dystrophy Association (MDA) has produced a series of free live and archived educational presentations called the Public Webinar Series. Expert-led topics include a variety of important issues. Make time to attend a high quality educational presentation from your own home.

MDA’s Shamrocks Against Dystrophy Program 2014
Retailers all over the U.S.A. sell green Shamrocks and gold Shamrocks. The money raised through the Shamrocks Against Dystrophy Program funds research, education, summer camps through the MDA. In 2013, Shamrocks raised a record-breaking $23.3 million!

MDAs Free Informational Resources
The Muscular Dystrophy Association (MDA) offers a variety of free informational resources about neuromuscular disease. Updated regularly, these resources cover a wide variety of topics related to neuromuscular disease.

Medical Equipment Assistance Programs
Many individuals with neuromuscular disease require medical equipment. The cost of equipment can be prohibitive, however, and medical insurance does not always provide good coverage. Fortunately, there are programs available to assist individuals in obtaining the needed equipment.

Meeting a Shooting STAR
Recently, I met a Shooting STAR. No, not a shooting star of the celestial kind, but of the human kind - the winner of the Charcot Marie Tooth Association’s “I’m a Shooting STAR” 2013 contest, ten-year-old Allison.

Microsoft Natural Ergonomic Keyboard 4000 Review
When I need to type, I have been using an ergonomic keyboard by Microsoft, called the Natural Ergonomic Keyboard 4000. This keyboard features a split keyboard design, with the two halves curved slightly. It also has a padded wrist rest. Using this keyboard does put less stress on my wrists.

Mitochondrial Myopathy
The mitochondrial myopathies are a group of genetic diseases that affect the mitochondria in the cells. These diseases are considered to be a neuromuscular disease, although this disease affects all the cells of the body.

Monotrail Mountain Masochist II Outdry Shoe Review
Overall, I highly recommend the Monotrail Mountain Masochist II Outdry shoe. Despite being used on ice, snow, and slush, these shoes have provided excellent comfort, fit, and stability while keeping my feet dry. When the weather improves, I look forward to using them for trail walking as well.

Muscular Dystrophy Association (MDA) Resources
Find out about the many services the Muscular Dystrophy Association provides to people with neuromuscular diseases.

My Buddy Book Review
My Buddy, a picture book written by Audrey Osofsky, tells the story of a boy with muscular dystrophy and companion dog, Buddy. Illustrated by Ted Rand, this book will help parents and teachers discuss important issues such as muscular dystrophy and physical disability with young children.

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