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Legg Perthes Disease and Osteochondritis
Announcement that Dancing with the Stars competitor Cameron Mathison - Ryan, on All My Children - had Legg Perthes disease as a child has raised awareness about Legg Perthes Disease, Osteochondritis, Childhood Hip Dysplasia, and Juvenile Rheumatoid Arthritis
Letter to Myself on Diagnosis Day
A question was posed recently on the DownSyndromePregnancy website - what would you tell yourself if you could travel back in time to the day of your child's diagnosis? It might be something different every time we think about our lives since; and so many new things might be added as time goes by.
Little League Challenger Division
The Little League baseball Challenger Division gives youth with physical and intellectual disabilities the opportunity to play on real teams with mainstream buddies who also love the game. Daily physical activity is encouraged by the national "Let's Move" campaign led by First Lady Michelle Obama.
Loneliness and Friendship in High School
Students with Down syndrome or other developmental disabilities may experience less loneliness and more friendships in high school than their mainstream peers, unless a club like Circle of Friends offers all students the support and encouragement found in inclusive extracurricular activities.
Mainstream Classes and Loneliness
Advocates for inclusive education, mainstream academic opportunities and support in regular classrooms find that socialization and lifelong friendships are wonderful side benefits to inclusion for students with developmental disabilities. Special education classrooms are not the cure for loneliness.
Managing Emergencies at School
Emergencies at school may affect children with disabilities, developmental delays, or chronic health conditions more seriously than their mainstream peers during evacuations or sheltering in place. Even emergency drills may pose risks to those who require monitoring, meals and insulin for diabetes.
Managing Rude Adults Who Insult Our Kids
Although most people have been taught that confrontational remarks are inappropriate on social occasions, speaking the truth in the face of a terrible lie is something parents are meant to do. We can't find the right words to speak out against prejudice, discrimination, and ridiculous stereotypes.
Maternal Differences and Down Syndrome Advocacy
Despite having in common the care and raising a son or daughter with Down syndrome, it's likely that we will get along with about 1in 10 other moms we meet in advocacy or support groups. As parents of a son or daughter with DS, our only credentials in the advocacy community are second-hand.
Medicaid Limits on Diabetes Testing Supplies
New Medicaid limits on diabetes testing supplies for children and teens with insulin dependent diabetes will cause far greater expense in medical care, including emergency events requiring paramedics, emergency room visits, and hospitalization. Best practices advise regular and frequent monitoring.
Medical ID Bracelets for Children and Teens
Identification bracelets, tags and other jewelry are especially important for children and teens who have conditions like diabetes, autism, Down syndrome, asthma or seizures, speech impairments and/or developmental disabilities. There are varieties that suit different fashion needs and special needs
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