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Moya Moya Disease and Down Syndrome
Moya Moya disease is a rare condition slightly more common in children with Down syndrome and should be considered if an individual with DS of any age shows symptoms of stroke, seizures, headache or continued loss of cognitive abilities. The Stanford Moyamoya Center has treated patients since 1991.
MRSA Antibiotic Resistant Staph Infections
MRSA and ORSA are antibiotic-resistant staph infections that can quickly become life threatening when diagnosis or treatment is delayed. Children with certain health conditions and developmental disabilities may be more susceptible due to skin conditions, injury, accidents or hospitalizations.
Multiple Births and Childhood Disability
Discussion of the birth of octuplets to Nadya Suleman included criticism and negative views of the higher risk of developmental disability and other special needs in babies born via multiple birth. Families raising children with special needs become alarmed by hateful comments reflecting prejudice.
Music Education - Every Voice Heard
Children with special needs benefit from participation in school music programs, expressing themselves by playing instruments, writing and singing songs, learning and being included in the arts.
Music Education and Music Therapy
Children with disabilities belong in school music programs, and should be allowed to express themselves by playing instruments, writing and singing songs.
Negotiating an Inclusive Kindergarten Placement
A quarter century after children with Down syndrome and other developmental disabilities demonstrated the benefits of mainstream kindergarten for themselves and their classmates, parents are still finding obstacles to enrolling their 5 year olds in neighborhood schools with their mainstream peers.
Neurofibromatosis is a set of 3 genetic disorders causing tumors to grow along the covering of nerves, also affecting bones and skin. Earliest symptoms in babies with the most common type of neurofibromatosis (NF1) are café au lait birthmarks. Two-thirds of individuals with NF1 are mildly affected.
New Down Syndrome Prenatal Testing Information
There are now 2 pamphlets available for expectant parents and medical professionals addressing the non-invasive prenatal tests for Down syndrome. Questions have been raised about factual inaccuracies and unbalanced information in the newer pamphlet available from national Down syndrome organizations
New Holiday Traditions - Childhood Disability
Winter holiday traditions can be elaborate, significant and also merry for families who have children with developmental or physical disabilities, chronic health conditions, or other special needs.
New Parent Information on Down Syndrome
Information about Down syndrome for expectant or new parents should soon be the most reliable and up to date resources available. Individuals and advocacy or support organizations often take responsibility for making information packets available for local hospitals, doctors and counselors.
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