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Mosaic and Translocation Down Syndrome
About 8% eight percent of families learn that their baby does not have garden variety Trisomy 21 and are diagnosed with Translocation and Mosaicism varieties. Fewer than 3% are born with the Mosaic variety, but there is ongoing research, reliable information and support available for all families.
Mothering Babies with Special Needs
Moms of children with special needs are mothers first, and it is often that fierce basic mother love that inspires advocacy and awareness efforts that positively change the world for our daughters and sons
Mothers Day Crafts - Childhood Disabilities
Teaching children what Mother's Day means and seeing them delight their moms with gifts and cards is why the holiday was invented. Many kids with disabilities enjoy making a macaroni necklace, one of a kind bracelet, decorated photograph, computer designed artwork, advocacy pin or thank you note.
Moya Moya Disease and Down Syndrome
Moya Moya disease is a rare condition slightly more common in children with Down syndrome and should be considered if an individual with DS of any age shows symptoms of stroke, seizures, headache or continued loss of cognitive abilities. The Stanford Moyamoya Center has treated patients since 1991.
MRSA Antibiotic Resistant Staph Infections
MRSA and ORSA are antibiotic-resistant staph infections that can quickly become life threatening when diagnosis or treatment is delayed. Children with certain health conditions and developmental disabilities may be more susceptible due to skin conditions, injury, accidents or hospitalizations.
Multiple Births and Childhood Disability
Discussion of the birth of octuplets to Nadya Suleman included criticism and negative views of the higher risk of developmental disability and other special needs in babies born via multiple birth. Families raising children with special needs become alarmed by hateful comments reflecting prejudice.
Music Education - Every Voice Heard
Children with special needs benefit from participation in school music programs, expressing themselves by playing instruments, writing and singing songs, learning and being included in the arts.
Music Education and Music Therapy
Children with disabilities belong in school music programs, and should be allowed to express themselves by playing instruments, writing and singing songs.
Negotiating an Inclusive Kindergarten Placement
A quarter century after children with Down syndrome and other developmental disabilities demonstrated the benefits of mainstream kindergarten for themselves and their classmates, parents are still finding obstacles to enrolling their 5 year olds in neighborhood schools with their mainstream peers.
Neurofibromatosis is a set of 3 genetic disorders causing tumors to grow along the covering of nerves, also affecting bones and skin. Earliest symptoms in babies with the most common type of neurofibromatosis (NF1) are café au lait birthmarks. Two-thirds of individuals with NF1 are mildly affected.
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