The Muscular Dystrophy Association (MDA) has produced a series of free educational presentations called the Public Webinar Series. Initially presented live, these video presentations have been archived and made available upon demand. Led by experts and people who are affected by neuromuscular disease, the topics covered by the Webinar Series include a wide variety of important issues.
At least twenty-two MDA webinars have been made available on-demand to the public on the MDA website. The most recent webinars include one called Straightening the Growing Spine and another called myMuscle Team – Learn How to Set Up a Personal Care Community.
Other topics of relevance to the entire neuromuscular disease community include: genetic counseling; fighting the flu; disability rights for individuals with neuromuscular disease; attending college with neuromuscular disease; living independently with neuromuscular disease; travel with disability; career and workplace issues; and dating and disability. The site also offers webinars on educational advocacy, with separate webinars for educational professionals and families. Some of the archived webinars have associated .pdf files with follow up answers to questions.
There are also several webinars specific to specific neuromuscular diseases. One of the webinars highlights research and treatment advances in Charcot Marie Tooth (CMT). There are several webinars related to amyotrophic lateral sclerosis (ALS, also known as Lou Gehrig’s disease). These include webinars about medical management, nutrition, advocacy, an update on research, and two webinars about the National ALS Registry (one for families, one for physicians). The ALS Starter Kit is also available in both webinar and .pdf formats.
An additional webinar has been made available by the MDA Transitions program giving updates about the program. This program is available in the Transitions Center. See resources for the web address. The site indicates that additional webinars will be made available in the future.
Upcoming webinars were planned by the MDA. Announced topics included research updates, and information for parents, including guidance following diagnosis of a child with neuromuscular disease and educational planning for a child with neuromuscular disease.
Advance notice for webinars will be sent to anyone registered with the MDA with an e-mail address on file with the MDA. Notices will also be posted by MDA on Twitter and facebook before live webinars. Attendance to a live presentation is free, but does require pre-registration. Participants in live webinars will have the opportunity to submit questions in advance via email.
The MDA Public Webinar Series can be tricky to find on the MDA website, and the listings have changed location with the recent website changes. To find the most complete list of webinars, starting at the homepage, click on the “Help Through Services” tab. Scroll to the bottom of the page, and click on the “More Resources” button. Next, click on the “Webinars” button. Alternatively, use the web address given below under Resources.
The MDA Webinars can also be accessed at the youtube website. Just type in “MDA Webinars” into the search box or use the web address below in Resources. Note that there non-related videos that may also show up with your search.
The MDA also offers many free publications about neuromuscular disease which can be found on their website (see Resources for web address). The free webinar series provides another educational tool for learning about important issues that affect the neuromuscular community. Make time to attend a high quality educational presentation from the comfort and convenience of your own home.
Muscular Dystrophy Association website, (n.d.). Advocacy Resources: Webinars. Retrieved from http://www.mda.org/services/more-resources/webinars on 2/13/15.
Muscular Dystrophy Association website, (n.d.). Publications. Retrieved from http://www.mda.org/publications on 2/1/13.
MDA e-update, (July, 2010). MDA Public Webinar Series offers a new way to learn. Retrieved from http://static.mda.org/eupdate/10july.html#webinar on 2/13/15.
Transitions Center, (2012). Webinars. Retrieved from http://transitions.mda.org/webinars on 2/13/15.
youtube website. MDA Webinars. Retrieved from https://www.youtube.com/watch?v=36jVq-WhhSE&list=PL22E86D96B9C4B6CB on 2/13/15.
Shamrock images courtesy of the MDA. Used with permission.
You can download a Shamrock at https://secure.mdausa.org/myspace/shamrock/ShamrockImages.aspx