Hello! Here's the latest article from the Neuromuscular Diseases site at BellaOnline.com.
Congenital Muscle Disease Registries
Recently, several new registries for individuals with various forms of congenital muscle disease have been started. These registries create databases in order to improve awareness, research effectiveness, and communication. Participation is voluntary and confidentiality will be protected.
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Have you participated in a registry and/or research? Why or why not? To participate in this and other free, fun online discussions, this site has a community forum all about Neuromuscular Diseases located here -
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Jori Reijonen, Ph.D., Neuromuscular Diseases Editor
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