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BellaOnline's Children with Special Needs Editor

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July 1 2010 Children with Special Needs Newsletter


Greetings! On the verge of the 4th of July weekend ~ I am wishing you happy and safe travels; as well as fun times at home, at picnics and the movies. Throwing something on the virtual barbecue for you and yours!

Here is the latest article from the Special Needs Children site at BellaOnline.com.

Down Syndrome and Spinal Concerns
http://www.bellaonline.com/articles/art67497.asp
What are the symptoms and treatment for spinal anomalies in children and teens with Down Syndrome? Do all need spinal x-rays for sports physicals?
Children with Down syndrome have been evaluated for the cervical spine disorder atlantoaxial subluxation for a quarter century. The 1996 evidence based guidelines for doctors are now expanded to refer to cranial-vertibral instability and spinal instabilities including occipito-atlanto deterioration.
http://www.bellaonline.com/articles/art67497.asp

Please visit specialneedschildren.bellaonline.com to browse through information about raising children and teens with disabilities.

IEP Meeting Cancellation Frustration
http://www.bellaonline.com/articles/art67274.asp
How can you prepare for unexpected challenges when planning meetings with school staff and administrators? Parents report frustration over poor attendance and late cancelations of school meetings by teachers, support staff or administrators after families members take time off work and have spent weeks gathering information to present for adequate support and approrpriate placement for their child.

Fly Fishing for Children and Teens with Down Syndrome
http://www.bellaonline.com/articles/art67208.asp

To participate in free, fun online discussions, this site has a community forum where we can discuss joys and concerns, articles and political developments, located here -

http://forums.bellaonline.com/ubbthreads.php?ubb=postlist&Board=57

I hope to hear from you sometime soon, either in the forum or in response to this email message. I thrive on your feedback!

Check out links and comments from SNC Editor Pamela Wilson on Twitter:
http://www.twitter.com/downsynadvocacy

Born to Act Players Submission for new Oprah Channel: http://www.youtube.com/watch?v=NggxizKfiQ0

Free DVD just for kids with special needs from Baby Einstein http://tinyurl.com/2dwan4x

Ireland: 19 yr old Róisín De Búrca had busy year
Scholarship winner plans to further her education
http://bit.ly/cyCv1q

College program in NJ welcomes
Morris Township student with Down syndrome
http://bit.ly/ahDRiX

WA: Faces of Inclusion:
http://tinyurl.com/FacesInclsnKSD

Work starts on See and Learn Speech
for children with Down Syndrome
http://bit.ly/cKnv1c

Special Needs Blog: Send an Information
Packet With Your Child to Camp
http://bit.ly/bJvDeu

The College of NJ
Student w/ Down syndrome, nine others
enter Career & Community Studies program
http://bit.ly/d6UlD8

New "Paul Reiser Show" hires Brock Waidmann to play son in wheelchair http://www.vcstar.com/news/2010/jun/29/playing-a-role-he-lives

Learning to Fly: Lose the Training Wheels program
Warm, funny account by volunteer
http://bit.ly/bneVcA

From Wrightslaw e-newsletter:
Answers to FAQs about your child's IEP:
http://bit.ly/aIO9es

NDSC Action Alert! Help Pass ABLE Act
Savings accounts for people with disabilities
http://bit.ly/cGCR8O

CA: Morro Bay surf camp for kids w/ disabilities on Today show
http://bit.ly/9IOot9

Down Syndrome Education Conferences:
Cleveland, OH
http://tinyurl.com/3acs9gu 1
Atlanta, GA
http://tinyurl.com/3675n2u
Dublin, Ireland
http://tinyurl.com/3yjhqwa

Down Syndrome Assoc of Minn: Teen & Adult Issues:
The Pace; Stubborn Is as Stubborn Does; Self-Talk
http://www.dsamn.org/adultissues

Has an adult with Down syndrome you know had a decline in skills?
ADSC Hashimotos Encephalopathy
http://tinyurl.com/27l9jqo

Obsessional Slowness in Teens and Adults with Down Syndrome http://tinyurl.com/ObsSlwnsDS

Mental Wellness in Teens & Adults w/ Down Syndrome:
http://tinyurl.com/MntlWlnsDS

Study reports parents do not focus on
"impact of disability," but rather the
lack of resources and support
http://bit.ly/925pYw

More info on HSC's National Youth Transition Center
http://bit.ly/aWui5Z

Ed Baker, 100, receives Legacy Award from Arc of King County
http://bit.ly/bflMlh

From To the Max: Walk the line: protective vs. paranoid parenting
http://is.gd/dbrSu

Start Speaking Up
"probably one of the hardest struggles"
http://www.danieljvance.com/disabledweek419a.html

Amish families have children w/ Autism
And adhere to vaccination schedules http://autism.suite101.com/article.cfm/autism_among_the_amish

El joven Manolo de Santacruz, primer cantaor
de flamenco con síndrome de Down
http://bit.ly/9RGPgL

Bienvenidos a Holanda:
http://www.dsindiana.org/AboutDsEspanol.php

Bienvenidos Bebés con Síndrome de Down:
http://tinyurl.com/WBwDSsp

De Gaulle sobre su hija con síndrome de Down:
«Una bendición; sin Anne no hubiera ido tan lejos»
http://bit.ly/cJTa0a

Jeux d'ete d'Olympiques Spéciaux Canada ~ Athlètes ambassadeurs
LA FIERTÉ DE SE DÉPASSER!
http://www.london2010.ca/fr/

Composition du Conseil d'administration du CREIN 2010-2011 http://www.crein.ca/node/76 Félécitations à toutes et tous !

Bahrain Down Syndrome Society,
Dr Mohammed Al Mannai: Advocates for inclusion
http://bit.ly/9ws21s

Disability-friendly playground opens at Cousler Park: 
http://www.ydr.com/ci_15385121

Special Needs Blog: Reader Recommends
Immediate Rewards for Toilet-Training Success
http://bit.ly/axUivD

MO: Mozingo Music Charity Golf Classic New date: Sept 2
Benefits Pujols Family Foundation
http://www.mozingomusic.com/charity-golf-classic

Diabetes Health is the First Diabetes Magazine to Launch
iPhone and iPod Touch Applications, DH Mobile
http://bit.ly/cJYG4F

Have fun passing this message along to family and friends, because we all love free knowledge!

Pamela Wilson, Special Needs Children Editor
http://specialneedschildren.bellaonline.com

Photography and Childhood Disability
Using Snapshots for Children with Special Needs
http://www.bellaonline.com/articles/art60026.asp

Doorstops for Children and Teens in Wheelchairs
http://www.bellaonline.com/articles/art66763.asp

Golf and Childhood Disability
http://www.bellaonline.com/articles/art52814.asp

Inclusive PE
http://www.bellaonline.com/articles/art46155.asp

Little League Challenger Division
http://www.bellaonline.com/articles/art65635.asp

Avoiding Heat Illnesses and Other Hazards
http://www.bellaonline.com/articles/art32522.asp

Child Safety - Pills, Purses and Suitcases
http://www.bellaonline.com/articles/art62309.asp

Preparing for Emergencies with Children with Special Needs
http://www.bellaonline.com/articles/art50320.asp

Supporting Other Mothers - Childhood Disability
http://www.bellaonline.com/articles/art59660.asp

Asking More from Medical Professionals
http://www.bellaonline.com/articles/art39121.asp


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