From the first time I checked out this site, I was struck by the candor of Hannah Butterworth. Hannah is a 24-year old Englishwoman who has had this disease since she was an adolescent.
Hannah’s site is simple to navigate but not simplistic in content. This young woman bares her soul and her experiences with Myalgic Encephalomyelitis, ME in Britain, which is known as Chronic Fatigue Syndrome, or CFS, in the US.
She talks a bit about how she came to her diagnosis and what treatments she has received. It’s all very personal; but, for those of us who suffer from these ‘invisible disabilities’, it’s easy to relate to a lot of what Hannah has gone through.
Besides the candor of the host, I feel that this site’s main strength lies in its discussion option entitled Honestly ME. Each month, Hannah posts a thought-provoking question and asks for feedback. She then chooses to put some of those responses in her copious feedback sections. There are stories from other ME/CFS sufferers mentioned in her web pages which keeps a human face to her site.
Finding support can often be tough for people with chronic disorders. Hannah gets around that obstacle by offering to hook people up so they can become e-pals. You can email her at firstname.lastname@example.org if you want more information on that.
Finally, I like that Hannah includes information on benefits and disability from a British standpoint. I found the information quite enlightening even if I am on the other side of the pond.
If you are looking for honest, personal information about living with chronic illness, I recommend that you visit http://www.geocities.com/hannah_butterworth/. Drop her a line and tell her I sent you.