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Down Syndrome Research - What's New?

Families, therapists, educators and medical professionals may not be aware of the latest research being done on Down syndrome, and also may benefit from a review of past research and best practices for children with Down syndrome.

The bimonthly e-newsletter of the National Down Syndrome Society announced that the entire Spring 2008 issue of the Mental Retardation and Developmental Disabilities Research Review reported research on Down syndrome, explained the importance of Universal Design for Learning for students with Down syndrome, and featured other information of interest to families and advocates. We still have a long way to go to bring attention to the benefits and necessity of research supporting individuals living with Down syndrome.

To keep updated on issues of interest to families, educators, therapists, medical professionals and others who work on behalf of individuals with Down syndrome, sign up for email alerts or newsletters where available from the organizations below. Browse at local bookstores, your public library, or online retailers for current information on Down Syndrome.



National Down Syndrome Society - Research
http://www.ndss.org
NDSS Down Syndrome Research Coalition
NDSS - Benefits and Risks of Particpating in a Clinical Trial
NDSS - Current Studies - AAC, Congenital Heart Disease
Using Health Care Guidelines for Individuals with Down Syndrome

Down Syndrome Health Issues
http://www.ds-health.com
Abstract of the Month
Down Syndrome Sites on the Internet -
Medical Resources

Down Syndrome Health Issues
Dr Len Leshin
http://www.ds-health.com
Birth through Adulthood -Health Care Guidelines for Individuals with Down Syndrome
http://www.ds-health.com/health99.htm
Specialty Clinic Perspectives -Adults with Down Syndrome
http://www.ds-health.com/adults.htm
Down syndrome health care guidelines record sheet
Down syndrome health care guidelines record sheet - Thirteen Years through Adulthood
Kennedy Krieger Institute Research Anouncement
http://www.ds-health.com

Adult Down Syndrome Center Publications and Newsletters
http://www.advocatehealth.com/adultdown/publications.html

Down Syndrome Research Center - Stanford University School of Medicine
http://dsresearch.stanford.edu/about.html
Stanford School of Medicine Center for Research and Treatment for Down Syndrome
Research focus - Cognition
http://dsresearch.stanford.edu/research
Mouse Models of Down Syndrome
http://dsresearch.stanford.edu/community/index2005q1.html
Stanford Research Team and Studies
http://dsresearch.stanford.edu/education

National Catholic Register
The Legacy of Jerome Lejeune and the Resurgence of Down Syndrome Research
http://ncregister.com/site/article/15354

Nutritional Supplements for Down Syndrome
History and Current Research

Down Syndrome Research and Treatment Foundation
Frequently Asked Questions - Research
http://dsrtf.org/research-faq.htm

Down Syndrome Research and Practice - Archive
http://information.downsed.org/library/periodicals/dsrp

Medical News Today
Down Syndrome Research Key to Advances in Genetic Science

Language Development in Adolescents with Down Syndrome
http://www.waisman.wisc.edu

Health Care Management of Teens and Adults with Down Syndrome - David S Smith
http://www.aafp.org/afp/20010915/1031.html

Useful Resources for Parents and Guardians of Teens and Adults with Down Syndrome
http://www.aafp.org/afp/20010915/1039ph.html

National Down Syndrome Congress
NDSC Healthcare Guidelines PDF
http://www.ndsccenter.org/resources/package.php

Healthcare Guidelines for People with Down Syndrome - Spanish
Pautas de Los Cuidados de la Salud de Las Personas con sindrome de down
http://empresas.mundivia.es/downcan/Programa_Salud.html

The Down Syndrome Quarterly has been moved to http://dsrf.org
Down Syndrome Research Foundation
Archives of Past DSQ newsletters may no longer be available, including:

Bridges4Kids News Digest
http://www.bridges4kids.org/Subscribe.html

Risk for depression among children with Down Syndrome
http://www.waisman.wisc.edu/faculty/pollak.html

Social Stories for Learning
The Gray Center for Social Learning and Understanding
http://www.thegraycenter.org/socialstories.cfm

Free sample of premade social story on waiting
http://www.sandbox-learning.com

Inclusive education in a private school
http://www.stpeterjc.org/STPeter.nsf

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