Here's the latest article from the Neuromuscular Diseases site at BellaOnline.com.
CMT, Grief, and Healing
Under the right circumstances, when I am not fatigued, when I wear orthortic bracing and when the ground level and firm, I walk well. Perhaps a casual observer would not know that I have any difficulties. It turns out, however, that I no longer walk well on the beach.
http://www.bellaonline.com/articles/art174843.asp
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