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BellaOnline's Neuromuscular Diseases Editor

International Neuromuscular Disease Websites

Living in the United States of America, most of my experience with organizations, associations, and services for those with neuromuscular disease has been within the U.S.A. I realize, of course, that people from all over the world suffer from neuromuscular disease, and need to find accurate, appropriate, and effective information, support, and services.

Below, you will find a list websites and links to organizations and summaries of the organizations that serve the worldwide neuromuscular diseases community. Websites are in English, unless otherwise noted. The addresses are not live links, so you will need to cut and paste them into your search bar.

I have not had any experience with most of these organizations: Make sure to check any resource that you plan to use to assure that it is reputable. If you have experience with any of the organizations below or with other organizations relevant to the neuromuscular diseases community, please feel free to post information in the Neuromuscular Diseases site forum.

These websites were accessed on April 1, 2014. I hope that this list will help you to locate appropriate services where you live.

International Websites Related to Neuromuscular Disease


Muscular Dystrophy Foundation of South Africa: Supports individuals affected by Muscular Dystrophy and neuromuscular disorders. http://www.mdsa.org.za/


Muscular Dystrophy Associations Singapore (MDAS). Serves the neuromuscular diseases community in Singapore. http://www.mdas.org.sg/

MDA China: Serves the neuromuscular diseases community in China. http://www.mdachina.org/ (primarily in Chinese)


Muscular Dystrophy Association South Australia: Serves the neuromuscular diseases community in South Australia. http://mdasa.org.au/

Muscular Dystrophy Association Australia: Serves the neuromuscular diseases community in Victorian region. http://www.mda.org.au/


European Alliance of Neuromuscular Disorders Associations (eamda): This site includes a list of 35 member organizations. http://www.eamda.eu/

European Patients Forum: A directory of European patient organizations related to neuromuscular disease. http://www.eu-patient.org/pos/pos_list.php?mastertable=Conditions&masterkey1=Neuromuscular%20disease

North America:

Muscular Dystrophy Association (MDA): The U.S. MDA serves those with neuromuscular disease, including information, research, and clinical services. http://www.mda.org

Muscular Dystrophy Canada: The Canadian association for muscular dystrophy and neuromuscular disease. http://muscle.ca/national/home.html

MDA Puerto Rico: The MDA in Puerto Rico (in Spanish). http://www.prmda.org/

South America:

Association de Distrofia Muscular de Peru. Serves individual in Peru. http://usuarios.discapnet.es/adm_peru/ (in Spanish, with a link to an English version of the website)


Muscular Dystrophy. This page lists many organizations, with addresses, around the world. http://dystrophy.com/muscular-dystrophy/Organizations+for+Muscular+Dystrophy

Muscle Help Foundation: This page links to relevant organizations around the world. http://www.musclehelp.com/sidebar/muscle_links

World Muscle Society (WMS): Focuses on the advancing and spreading knowledge related to the neuromuscular field. http://www.worldmusclesociety.org/

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