Social Networking and Neuromuscular Disease
Social networking has made connecting with others easier than ever. Interacting through social networks may be especially helpful for those who have significant disability which limits their opportunities to interact with others in person, including many people with neuromuscular disease.
My Family Health Portrait 3.0 Resource
The My Health Family Portrait tool can help you map out your family health history. Available online, this tool is simple and easy to use. You may find this tool to be useful for communicating this important information to your health care providers.
CMT Exercise Video Series from the CMTA
The Charcot Marie Tooth Association (CMTA), has been producing a series of short instructional videos demonstrating physical therapy exercises for individuals with Charcot Marie Tooth. Currently 4 of these videos are available at no cost at the CMTA website, with an additional 3 videos planned.
Clinical Trials and Neuromuscular Disease
Clinical trials involve experimental research in order to find more effective treatments and/or cures for disease. By becoming involved in research, whether as a participant, or through fundraising and advocacy, you can help to support ongoing research efforts in neuromuscular disease.
Singing, Health, and Neuromuscular Disease
While I did not start singing to improve my respiratory health, vocal exercises and singing with a choir have had significant health benefits for me. You might find similar benefits, while also experiencing the fun and joy that involvement with music brings into life.
ALS Association Webinar Series
The ALS Association offers webinars on a variety of topics regarding to research and care services related to amyotrophic lateral sclerosis (ALS). Each webinar features top researchers, specialists, and care providers. Interested individuals can attend a current or archived webinar at no cost.
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