Centers of Excellence and Neuromuscular Disease
Centers for Excellence provide cost efficient expert health care, leading to optimal outcomes. For individuals with neuromuscular disease, visiting a Center for Excellence can provide the opportunity for high quality, comprehensive medical care.
Kyphosis in Neuromuscular Disease
Kyphosis is a type of abnormal spinal curvature that causes the spine to curve excessively, causing a bowing or rounding. This leads to a posture that appears to be slouching or ‘hunchbacked.’ Curvature in the spine in individuals with neuromuscular disease usually affects the whole spine.
Tales of a Shambassador
As area businesses again blossomed with green and gold Shamrock’s during February and March of 2015, I was again asked by my regional MDA office to act as a Shambassador. My duties include visiting area businesses that participate in the MDA Shamrocks program to say thank you.
MDA Transitions Center
The Muscular Dystrophy Association Transitions Center focuses on the needs of teens and young adults with neuromuscular disease. Launched in 2011, this site offers support, information, and resources targeting this group while also raising awareness of the challenges this group will experience.
What is a Rare Disease?
Neuromuscular diseases are considered to be rare diseases. What qualifies the various neuromuscular diseases to be considered as rare?
International Clinical Trials Registry Platform
The World Health Organization (WHO) maintains an international registry of clinical trials. The International Clinical Trials Registry Platform (ICTRF) lets clinical researchers communicate their research efforts internationally through registering their clinical trials.
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