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g Neuromuscular Diseases Site

BellaOnline's Neuromuscular Diseases Editor

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Abilities Expo 2016
At the Abilities Expo, you will have the opportunity to learn about the many products, services, and non-profit organizations that serve those with physical challenges, including those with neuromuscular disease. Admission to the Abilities Expo is free.

Getting a Handicapped Parking Permit
When I asked about receiving a handicapped parking permit, I received paperwork for a permanent placard. Find out more about who qualifies for a handicapped parking permit and how to obtain one if you do.

Spiritual Journaling
Recently, much of my journaling has taken the form of spiritual journaling. I have found this to be a valuable practice to help me cope with the neuromuscular disease, remember my many blessings, and strengthen my walk with God. Journaling has also been found to have important health benefits.

Extraordinary Measures Movie Review
The movie Extraordinary Measures was inspired by the true story of a family’s involvement in the search for a treatment for the neuromuscular disease Acid Maltese Deficiency (Pompe disease). This movie shows the power of hope and the human spirit to overcome seemingly insurmountable obstacles.

Pompe Disease
Pompe Disease, more formally known as Acid Maltease Deficiency (AMD), leads to progressive weakness of the muscles in the hips, upper legs, upper arms, and respiratory system. The infantile onset form also affects the muscles of the heart.

Homelessness and Physical Disability
According to a recent report, in 2014, for disabled individuals relying on U.S. Social Security Supplemental Income as their main or only source of income, SSSI does not cover the cost of a modest one bedroom apartment. An estimated 19% of homeless adults in the U.S. are disabled.


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