International Neuromuscular Disease Websites

Living in the U.S.A., most of what I know about organizations, associations, and services for those with neuromuscular disease has been focused in the U.S.A. I realize, of course, that people all over the world suffer from neuromuscular disease, and need to find appropriate and effective information, support, and service.

The following lists some of the websites to organizations and summaries of the organizations that serve the worldwide neuromuscular diseases community. I do not have experience with most of these organizations, however, so make sure to check any resource that you plan to use to be sure that it is reputable. If you have experience with any of the organizations below or with other organizations relevant to the neuromuscular diseases community, please feel free to post information in the forum.

These websites were accessed on March 8, 2012. This list is by no means exhaustive. I hope that this list will help you to locate appropriate services where you live.

International Websites Related to Neuromuscular Disease

Africa:

Muscular Dystrophy Foundation of South Africa: Supports individuals affected by Muscular Dystrophy and neuromuscular disorders. http://www.mdsa.org.za/

Asia:

Muscular Dystrophy Associations Singapore (MDAS). Serves the neuromuscular diseases community in Singapore. http://www.mdas.org.sg/

MDA China: Serves the neuromuscular diseases community in China. http://www.mdachina.org/

Australia:

Muscular Dystrophy Association South Australia: Serves the neuromuscular diseases community in South Australia. http://mdasa.org.au/

Muscular Dystrophy Association Australia: Serves the neuromuscular diseases community in Victorian region. http://www.mda.org.au/

Europe:

European Alliance of Neuromuscular Disorders Associations (eamda): This site includes a list of 35 member organizations. http://www.eamda.eu/index.php?option=com_wrapper&view=wrapper&Itemid=54

European Patients Forum: A directory of European patient organizations related to neuromuscular disease. http://www.eu-patient.org/pos/pos_list.php?mastertable=Conditions&masterkey1=Neuromuscular%20disease

North America:

Muscular Dystrophy Association (MDA): The U.S. MDA serves those with neuromuscular disease, including information, research, and clinical services. http://www.mda.org

South America:
Association de Distrofia Muscular de Peru. Serves individual in Peru. http://usuarios.discapnet.es/adm_peru/

Worldwide:

Muscle Help Foundation: This page links to relevant organizations around the world. http://www.musclehelp.com/sidebar/muscle_links

World Alliance Neuromuscular Disorder Associations (WANDA): This page lists associations related to neuromuscular disease across the world. http://www.wandaweb.org/pages/links.htm

World Muscle Society (WMS): Focuses on the advancing and spreading knowledge related to the neuromuscular field. http://www.worldmusclesociety.org/

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