Children with ND
Issues related to growing up with neuromuscular disease and parenting a child with neuromuscular disease.
Coloring Pages Featuring Children with Disability
A variety of free downloadable coloring booklets, pages, and activities for young children can be found on the internet. This article lists some of the websites with coloring pages and booklets available that highlight children with disabilities including mobility issues.
Free Informational Resources from the MDA
The Muscular Dystrophy Association (MDA) offers a variety of free resources about neuromuscular disease. Updated regularly, these resources cover a wide variety of topics related to neuromuscular disease. Many MDA publications are available in Spanish as well.
Interactive Games for Young Children
Everyone loves to play, including babies and young children with disabilities that limit their mobility. Interactive movement games engage young children, gently exercise their muscles, teach them about social interactions, and help you to have fun together. Get started with a couple of examples.
Meeting a Shooting STAR
Recently, I met a Shooting STAR. No, not a shooting star of the celestial kind, but of the human kind - the winner of the Charcot Marie Tooth Associationís ďIím a Shooting STARĒ 2013 contest, ten-year-old Allison.
My Child Has CMT Review
The publication My Child Has CMT: A guide for parents of children with Charcot-Marie-Tooth can help to answer the many questions parents of a child with CMT will have, and will help parents to connect their child with treatment and resources.
Newborn Screening and Neuromuscular Disease
As diagnosis and treatment protocols become more advanced, newborn screening will likely become increasingly possible for neuromuscular disease. As these advances are made, ethical and practical decisions regarding newborn screening for neuromuscular disease will need to be made.
Newborn Screening Saves Lives Reauthorization Act
The Newborn Screening Saves Lives Reauthorization Act (H.R. 1281/S. 1417) was proposed earlier this year in the U.S. Senate and Congress. If passed, this Act would reauthorize federal programs related to newborn screening.
Reflections of a Peacemaker Book Review
Reflections of a Peacemaker: A Portrait Through Heartsongs contains 250 previously unpublished poems by Mattie Stepanek, including his final poem. Written between the ages 3 and 13, some of the poems were funny, some were sad, and all were insightful and heartbreakingly honest.
The Teacherís Guide to Neuromuscular Disease
Both teachers and parents will have many questions about how to best support a child with neuromuscular disease in the classroom. Available free from the MDA website, The Teacherís Guide to Neuromuscular Disease will help answer these questions for teachers and parents.
Visit to an MDA Summer Camp
This year, I received an invitation to visit the MDA Summer Camp in the Grand Rapids, Michigan area on their visitorís day. The MDA Summer Camps offer many different fun camp activities modified for the participation and enjoyment of children and teenagers who have physical disabilities.
What is a 504 Plan? Neuromuscular Diseases Homepage | Editor's Picks Articles | Top Ten Articles | Neuromuscular Diseases Site Map
Schools in the U.S. that receive federal funding must adhere to the provision in Section 504 of the federal Rehabilitation Act of 1973. Section 504 guarantees individuals with disabilities equal access to education as a civil right. Plans based on Section 504 are referred to as 504 Plans.
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