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Archive by Date | Archive by Article Title Neuromuscular Disease and Spiritual Journaling Recently, most of my journaling has taken the form of spiritual journaling. I have found this type of journaling to be beneficial to my ability to cope and thrive despite neuromuscular disease. Along with emotional and psychological benefits, journaling also has important health benefits. Andreas and His CMT Challenge Although Andreas Johansson suffers from the progressive neuromuscular disease Charcot Marie Tooth (CMT), he has not let that stop him from pursuing his dreams. Coming to the United States from Sweden, he embarked upon a trek across the U.S. on an EliptiGO, a self-powered eliptical style scooter. Discrimination and Neuromuscular Disease The Americans with Disabilities Act protects Americans with disabilities, including those caused by neuromuscular disease, from discrimination. I now believe, however, that I should have asserted my right to reasonable accommodation on my behalf by my employer. Coloring Pages Featuring Children with Disability A variety of free downloadable coloring booklets, pages, and activities for young children can be found on the internet. This article lists some of the websites with coloring pages and booklets available that highlight children with disabilities including mobility issues. Writing to Find Meaning Often, it becomes difficult to find the meaning behind the difficulties we go through. Experiencing a neuromuscular disease can leave one wondering how to make sense of it all. Many people find writing to be cathartic. The technique called clustering can help you to find meaning in your situation. Neurology Now Magazine Neurology Now, a magazine published by the American Academy of Neurology, and its companion website provide readers with accurate and readable articles about a variety of neurological diseases, including neuromuscular disease. Social Networks and Neuromuscular Disease Social networking has made connecting with others easier than ever. This can be especially true for those who have significant disability limiting their opportunities to interact with others in person, including many people with neuromuscular disease. Support Groups and Neuromuscular Disease If you do not yet belong to a support group, I strongly urge you to find a support group in your area or online. The relationships that you build will help you to live, cope, and even thrive despite neuromuscular disease. CMT and Physical Therapy Training Resource Because Charcot Marie Tooth is relatively rare, many physical therapists do not have much training or experience with CMT. The Charcot Marie Tooth Association (CMTA)and Physiotherapy Associates, Inc. (PTA) have partnered to provide a resource for physical therapists and their patients. CMT and Footwear The right shoes cannot stop the progression of CMT. They can, however, provide better stability, balance, and comfort. This can help those of us with CMT keep walking as well as possible for as long as possible.
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