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g Neuromuscular Diseases Site

BellaOnline's Neuromuscular Diseases Editor

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 F E A T U R E   A R C H I V E  

Archive by Date | Archive by Article Title

A Teacher’s Guide to Neuromuscular Disease Review
Both teachers and parents will have many questions about how to best support a child with neuromuscular disease in the classroom. Available free from the MDA website, A Teacher’s Guide to Neuromuscular Disease will help answer these questions for teachers and parents.

CMT Awareness Month 2015
Recently, I had the opportunity to speak over the telephone with Bethany Meloche. During our conversation we discussed her history of diagnosis, her involvement with the CMTA, and the Charcot Marie Tooth Awareness Month 2015.

Stress, Expectation, and Change
Broadly defined, there are two types of problems. There are problem that can be changed, fixed, improved, or made better, and problems that cannot. Spending time focusing on unfixable problems can become a major source of stress.

What is Range of Motion Therapy?
Range of motion therapy refers to a form of physical therapy designed to stretch muscles, keep joints flexible, decrease pain, and lessen the development of contractures. It may be effective for many individuals with neuromuscular disease, even those who cannot engage in more strenuous activities.

New Balance WW928 Shoe Review
Finding the right shoe to accommodate my needs is not easy. Currently, the shoe that I most often wear is a pair of extra-depth walking shoes made by New Balance (model WW929).

Divisions of the Nervous System
Understanding the divisions of the nervous system can help you improve your understanding of neuromuscular disease. The nervous system can be divided into two broad categories – the central and peripheral nervous systems. Neuromuscular diseases directly affect the peripheral nervous system.

Ice Bucket Challenge for ALS 2015
Last summer, the Ice Bucket Challenge raised much needed funding and awareness for ALS. According to the ALS Association and MDA, the Challenge is being extended again during August of 2015. Get involved!

Walking My First 5K
Although I finished walking my first 5K race at close to last place, I count this as a personal victory. Find out why in this article.

The Ensuring Access to Clinical Trials Act
The Ensuring Access to Clinical Trials Act of 2015 was introduced in to U.S. legislators. If passed, this Act would make the Improving Access to Clinical Trials Act of 2009 permanent, removing financial barriers for individuals receiving SSI or Medicaid to participate in clinical trials.

Letterbox Hiking
Who doesn't love a treasure hunt? Letterboxing involves hiking and navigational skills, with the fun of finding a “treasure” at the end of the hike. Trails can be selected by level of difficulty and wheelchair accessibility, making this a great hobby for individuals with neuromuscular disease.

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