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Review of PILARI Website
PILARI stands for The Pregnancy and Infant Loss Awareness and Research Institute. The website includes a group of parents who have experienced these losses. These parents also write articles about various topics related to these losses. Under the About Us tab, the website states that it has only three objectives. i\I addition to supporting people who experience pregnancy and infant loss, the also aim to “break the silence by promoting awareness” and to “inspire further research.” A lot of websites offer support and sometimes that's the only place you can find support after a miscarriage or pregnancy loss. However, I also feel the last two objectives are really important too. Getting people talking about these losses and figuring out why they happen in the first place are often neglected.
The site includes a Red Alert section which is something I really haven't seen before. It's full of articles about things which may cause pregnancy and infant loss. Although many miscarriages are not preventable and there is no cause found in many cases, this section of the website offers helpful information on things you may be able to influence like influenza and certain medications.
The site includes a Victories tab. This section lists fund raising efforts, highlights support organizations and lists memorial events. There is also some information about pending legislation and petitions regarding awareness. It's nice to be able to read positive stories about people who are reaching out, lending support and helping to increase awareness.
The site also has several articles about what to say (and not to say) to someone who has experienced pregnancy or infant loss. There are articles geared toward friends and family and also a series of articles geared toward professionals. Additionally, the site a spot for personal stories. There is a long list of international resources as well as resources for the United States, Canada, the United Kingdom, Spain, Romania, Mexico and France.
The site has a place where you can submit articles of your own. There's just a quick form to fill out.. They accept informative articles from both parents and professionals.
You can check them out at http://www.pilari.org/.
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