g Text Version
Beauty & Self
Books & Music
Food & Wine
Health & Fitness
Hobbies & Crafts
Home & Garden
News & Politics
Religion & Spirituality
Travel & Culture
TV & Movies

Bored? Games!
Take a Quiz
Rate My Photo

Natural Living
Folklore and Mythology
Distance Learning

All times in EST

Low Carb: 8:00 PM

Full Schedule
g Neuromuscular Diseases Site

BellaOnline's Neuromuscular Diseases Editor


My Child Has CMT Resource Review

Whenever a child receives a diagnosis of neuromuscular disease, the child’s parents will have many questions, concerns, and emotions regarding the new diagnosis. The parents of a child diagnosed with Charcot Marie Tooth disease (also sometimes called) will be no exception. The publication My Child Has CMT: A guide for parents of children with Charcot-Marie-Tooth can help to answer the many questions parents will have, and will help parents to connect their child with treatment and resources.

This guide includes sections describing CMT, answering common questions parents have about CMT and explaining how to keep a medical record for a child affected by CMT. It also defines common medical terms parents are likely to hear, and gives parents the information they need to locate the services and resources available for children with CMT.

What I most appreciate about My Child Has CMT, however, is that this guide goes beyond simply providing important facts about CMT. This guide discusses the emotions a parent will be likely to experience and how to cope with these emotions. The parent of a child who has been diagnosed with CMT also shares his experience when his child was diagnosed.

The Charcot Marie Tooth Association (CMTA) publishes My Child Has CMT: A guide for parents of children with Charcot-Marie-Tooth. Pubilcation was supported by a grant from the Pennsylvania Department of Health. Pat Dreibelbis, former Director of Program Services for the CMTA, edited the guide.

The CMTA also publishes a bi-monthly newsletter and other publications regarding CMT, funds research through their Strategy to Accelerate Research (STAR), coordinates a network of support groups and social networking on Facebook, and hosts conferences. Recently, the CMTA revised its website.

This guide can be found on the CMTA website in the CMTA store (see web address below). A print copy may order one from the CMTA for $8.00 if you are a member of the CMTA. The cost for nonmembers is $10.00.

I highly recommend this booklet to any parent who has a child who has been diagnosed with Charcot Marie Tooth disease. Parents of newly diagnosed children will find My Child Has CMT: A guide for parents of children with Charcot-Marie-Tooth to be particularly useful.

Charcot Marie Tooth Association website, (n.d.). Retrieved 9/8/15 from .

Dreibelbis, P. (ed.), (n.d.). My Child Has CMT: A guide for parents of children with Charcot-Marie-Tooth. Charcot Marie Tooth Association: Chester, PA. Retrieved 9/8/15 from .

Parents of a child with Charcot Marie Tooth or other neuromuscular disease will also find the following publication, available free download from the Muscular Dystrophy Association (MDA) website, to be useful, as well:

Muscular Dystrophy Association, (2006). Learning to Live with Neuromuscular Disease: A Message for Parents. Available as a free download at .

Add My+Child+Has+CMT+Resource+Review to Twitter Add My+Child+Has+CMT+Resource+Review to Facebook Add My+Child+Has+CMT+Resource+Review to MySpace Add My+Child+Has+CMT+Resource+Review to Digg My+Child+Has+CMT+Resource+Review Add My+Child+Has+CMT+Resource+Review to Yahoo My Web Add My+Child+Has+CMT+Resource+Review to Google Bookmarks Add My+Child+Has+CMT+Resource+Review to Stumbleupon Add My+Child+Has+CMT+Resource+Review to Reddit

Learn more about CMT.
Read about Handling Grief Over Health Losses.
Find out about what neuromuscular disease is.
Related Articles
Editor's Picks Articles
Top Ten Articles
Previous Features
Site Map

For FREE email updates, subscribe to the Neuromuscular Diseases Newsletter

Past Issues

Printer Friendly
tell friend
Tell a Friend
Email Editor

Content copyright © 2018 by Jori Reijonen, Ph.D.. All rights reserved.
This content was written by Jori Reijonen, Ph.D.. If you wish to use this content in any manner, you need written permission. Contact Jori Reijonen, Ph.D. for details.


g features
Easy Yoga for Arthritis DVD Review

Balance and Neuromuscular Disease

MDA’s Shamrocks Fundraiser 2017

Archives | Site Map


Past Issues

Note: BellaOnline uses cookies to help provide a consistent user experience. Our advertisers may use cookies to help customize ads. Please contact us with any question about our cookie use.

Summertime Foods
Corn on the Cob
Burgers on the Grill
Apple Pie


| About BellaOnline | Privacy Policy | Advertising | Become an Editor |
Website copyright © 2018 Minerva WebWorks LLC. All rights reserved.

BellaOnline Editor