logo
g Text Version
Beauty & Self
Books & Music
Career
Computers
Education
Family
Food & Wine
Health & Fitness
Hobbies & Crafts
Home & Garden
Money
News & Politics
Relationships
Religion & Spirituality
Sports
Travel & Culture
TV & Movies

dailyclick
Bored? Games!
Nutrition
Postcards
Take a Quiz
Rate My Photo

new
European Travel
Action Movies
Bible Basics
Houseplants
Romance Movies
Creativity
Family Travel


dailyclick
All times in EST

Full Schedule
g
g Neuromuscular Diseases Site

BellaOnline's Neuromuscular Diseases Editor

g

The CMT Survivor's Guide


The Charcot Marie Tooth Association (CMTA) recently published a new resource for individuals who have been diagnosed with Charcot Marie Tooth (CMT). Titled CMT Survivorís Guide: a resource guide for living life your way, this e-booklet reviews information that a newly diagnosed individual should know.

The booklet, available for free from the CMTA website, provides seven ďSurvivorís tips.Ē These include tips on the following topics: learning about CMT; being proactive in oneís care; foot care; networking with others with CMT and finding social support; finding appropriate medical care; appropriate exercise and diet; and considerations for surgical intervention. As a bonus tip, this Guide encourages individuals to become involved in efforts to find a cure for Charcot Marie Tooth.

Within most topics, the CMT Survivorís Guide provides links to further information and resources. Through reviewing the information in this Guide and the provided links, individuals new to the diagnosis of CMT and their families will be able to access the information that they need in an easily accessible format.

Because there is not yet a medical treatment or cure for the neuromuscular disease CMT, some individuals new to a CMT diagnosis may be under the impression that there is not anything that can be done to cope with CMT or improve quality of life. As made clear in the e-booklet, this is not true. Individuals with CMT can do much to influence how they live, cope, and even thrive with and despite this genetic disease.

Those of us who have been coping for some time with CMT will find that this e-booklet provides a good overview of CMT. It would also provide a good resource for providing others with an overview of CMT and what coping with this diagnosis entails.

Written by the Charcot Marie Tooth Association, the CMT Survivorís Guide: a resource guide for living life your way e-booklet can be accessed for free at the CMTA website (see Resource below). It can be accessed as a flipbook and a .pdf file. Visit the CMTA website to gain access to your copy today.

Resources:

CMT Survivorís Guide, (n.d.). Available to download for free at http://www.cmtausa.org/index.php?option=com_content&view=article&id=805:cmt-survivors-guide&catid=20:no-share-bar .

CMTA website, (2013). Retrieved from http://www.cmtausa.org/index.php on 3/29/14.




Add The+CMT+Survivor%27s+Guide to Twitter Add The+CMT+Survivor%27s+Guide to Facebook Add The+CMT+Survivor%27s+Guide to MySpace Add The+CMT+Survivor%27s+Guide to Del.icio.us Digg The+CMT+Survivor%27s+Guide Add The+CMT+Survivor%27s+Guide to Yahoo My Web Add The+CMT+Survivor%27s+Guide to Google Bookmarks Add The+CMT+Survivor%27s+Guide to Stumbleupon Add The+CMT+Survivor%27s+Guide to Reddit




Find out about clinical trials for neuromuscular disease.
What is arthroscopic surgery?
Learn about developing resilience.
RSS
Related Articles
Editor's Picks Articles
Top Ten Articles
Previous Features
Site Map


For FREE email updates, subscribe to the Neuromuscular Diseases Newsletter


Past Issues


print
Printer Friendly
bookmark
Bookmark
tell friend
Tell a Friend
forum
Forum
email
Email Editor


Content copyright © 2014 by Jori Reijonen, Ph.D.. All rights reserved.
This content was written by Jori Reijonen, Ph.D.. If you wish to use this content in any manner, you need written permission. Contact Jori Reijonen, Ph.D. for details.

g


g features
Quizzes About Neuromuscular Disease

Worldwide Neuromuscular Disease Consortia

What is the 21st Century Cures Initiative?

Archives | Site Map

forum
Forum
email
Contact

Past Issues
memberscenter


vote
Poetry
Daily
Weekly
Monthly
Less than Monthly



BellaOnline on Facebook
g


| About BellaOnline | Privacy Policy | Advertising | Become an Editor |
Website copyright © 2014 Minerva WebWorks LLC. All rights reserved.


BellaOnline Editor