Caring for a Baby or Child with a Stoma
Young children who require this type of surgery in their youngest months or years may grow up with ostomy care as part of their daily routine. Very rarely do parents or other adults in the family have prior experience with an ostomy, and I recommend watching one of the many YouTube or advocacy group videos recorded by confident teens or young adults who demonstrate changing their own ostomy bags.
While it is always recommended that parents be trained in the hospital or doctor's office on best practices for infants and toddlers, by nurses and other medical professionals, it is both comforting and encouraging to listen to typical young adults explain the procedure. Practical advice, humor and compassion is offered by individuals who understand the everyday problems that might be encountered by the child growing up in your family.
There are many sources online for information and support, often provided by medical professionals, for individuals who share up-to-date and reliable product reviews and advice when their or their child's ostomies were new.
Ostomy Pouching for Infants - UCSFMedicalCenter
Caring for Your Child's Stoma - UCSFMedicalCenter
How to Change Your Ileostomy: 1 year later, 2 piece bag
There are resources around the world, in many languages. English speaking parents may also find translations of helpful international sites like the Dutch site, Stomaatje.
Children and babies with a stoma - Stomaatje.com
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