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Maternal Differences and Down Syndrome Advocacy
Despite having in common the care and raising a son or daughter with Down syndrome, it's likely that we will get along with about 1in 10 other moms we meet in advocacy or support groups. As parents of a son or daughter with DS, our only credentials in the advocacy community are second-hand.
Caring for a Baby or Child with a Stoma
A stoma may be required to provide a baby or child an alternate route to eliminate waste. Premature babies with Necrotizing Enterocolitis, and preemies or newborns with Down syndrome may have Hirschsprung’s disease. Congenital anomalies, disease, obstructions or atresia may make stomas necessary.
Abusive Relationships, Education and Schools
Helicopter Parenting and Childhood Disability
Finding Wheelchairs for Dolls
Prejudice, discrimination, and race
Prejudice, discrimination, and racism in schools and communities have created obstacles for children with disabilities even greater than for their mainstream peers.
Teething Babies with Down Syndrome
Babies with Down syndrome experience discomfort when teething just like their mainstream peers. There are safe and often effective strategies for reducing pain and comforting infants dealing with erupting teeth and associated symptoms.
Medication for Behavioral Issues - Down Syndrome
Parents have learned to be very cautious in considering medication to avoid medication for compliance, even when a child or teen with Down syndrome has escalating behavioral challenges, because there is a greater likelihood that changes in behavior are due to medical reasons, abuse or neglect.
Postnatal Depression and Newborn Diagnosis
Strangers Observing My Son with Down Syndrome
People in public who stare at children with Down syndrome without smiling or greeting them can make parents uncomfortable or angry. When my son was younger, I decided to approach strangers who stopped to watch him, and discovered that there are many stories out there in the world I do not know.
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