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Down Syndrome Stereotypes and Advocacy
In a recent articles, parent advocates have discussed the perils of marketing our sons and daughters with Down syndrome as merely 'cute' when we know better than anyone else that those who share their diagnosis are a complex, diverse and interesting community, even while they are young.
Mental Health Issues - Down Syndrome
Scarce resources for childhood mental illness in your community often means non-existent resources for young people with Down syndrome, especially where there are few resources that are culturally competent or experienced with diversity
Insensitive Fundraising with the Best Intentions
A rare nighttime Fun Run fundraiser for Special Olympics known as "Run from the Cops" is inappropriate and insensitive. Even the most well-trained, experienced and compassionate law enforcement personnel could take actions that have deadly consequences if a person with a disability does not comply.
Privacy and Parent to Parent Advocacy
Individual and parent-to-parent interactions online can be destructive to broad advocacy efforts and humiliating for children, teens or adults with disabilities, when privacy and respect issues are disregarded; especially when families appropriate the focus for support and services to themselves.
Postpartum Depression and Newborn Diagnosis
Having a beautiful new baby diagnosed at birth with a childhood disability can cause a period of readjustment for new moms, but postpartum depression is different in significant ways. Some mothers experience both difficulties, and can remain undiagnosed despite cascading symptoms of depression.
Strangers Observing My Son with Down Syndrome
People in public who stare at children with Down syndrome without smiling or greeting them can make parents uncomfortable or angry. When my son was younger, I decided to approach strangers who stopped to watch him, and discovered that there are many stories out there in the world I do not know.
Solidarity for Civil Rights and Human Rights
Events unfolding in Ferguson Missouri in August of 2014 following the death of Michael Brown resulted in a call for solidarity for civil rights and human rights from advocacy and support organizations throughout the country. Unfortunately, that call happened when we should still have been listening.
When Diabetes is Like Holding a Tiger by the Tail
Children and teens with insulin-dependent diabetes (type one) may experience a 'honeymoon phase' of what seems like controllable blood glucose where almost every reading is within the typical range. When the honeymoon is over, families may feel that diabetes is like holding a tiger by its tail
Age Appropriate Misbehavior - Toddlers Throw
Babies and toddlers with Down syndrome often engage in age-appropriate misbehavior as they pass through developmental milestones as early as their mainstream peers. Throwing food, plates and cups at meal time during the 'hold and release, cause and effect' stage can be delightful for the child.
Teens with Type One Diabetes
Teens with Type 1 Diabetes face the same challenges of adolescence as their mainstream peers, with the added stress of managing a chronic condition with terrible complications. They deserve ongoing support and encouragement whether diagnosed in early childhood or while dealing with a new diagnosis.
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