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g Special Needs Children Site
Pamela Wilson
BellaOnline's Special Needs Children Editor

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Rare Syndromes & Diseases

Ablepharon-Macrostomia Syndrome star
Ablepharon-Macrostomia Syndrome - AMS - is a rare disease that can cause craniofacial anomalies, and may also cause developmental delays, differences in a child's skin, fingers, genitals, nipples or the abdominal wall.

Dandy Walker Syndrome Information, Resources and Support star
Information, resources and support for families of children with Dandy-Walker Syndrome

Hemophilia: What Is It? star[offsite link]
This site provides excellent information on the basics of hemophilia, what causes it, treatments, etc.

Trisomy 18, Trisomy 13, and Related Disorders - A Guide for Professionals star[offsite link]
This site is recommended for health professionals working with families whose baby is diagnosed with Trisomy 18, 13, and Related Disorders and is part of the web site for the Support Organization for Trisomy 18, 13, and Related Disorders (SOFT) .  "SOFT is a network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding diagnosis and care in trisomy 18, 13, and related disorders.  Support is provided during p

Links marked with the [offsite link] designation point to websites not associated with BellaOnline.com. BellaOnline.com is not responsible for the material found there.

Special Needs Children Homepage | Special Needs Children Site Map

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