If your child is diagnosed with Ablepharon Macrostomia Syndrome, you may have many questions about the disorder and what it might mean for your son or daughter. The resources below may be of help in finding resources and support for the best quality of life and richness of experience for your sweet little child, as well as other families who share similar concerns and goals.

National Organization for Rare Disorders
NORD - Ablepharon Macrostomia Syndrome

Allison Brooke's Web Page on Ablepharon-Macrostomia Syndrome

Craniofacial Disorders - Family Village Links
name of link

FACES: The National Craniofacial Association

Web MD Article - Ablepharon-Macrostomia Syndrome (AMS


Books of interest may be found at your local library, bookstore, doctors office or parent group
*Click on a book to go to Amazon.com.