Ablepharon-Macrostomia Syndrome

Ablepharon-Macrostomia Syndrome
If your child is diagnosed with Ablepharon Macrostomia Syndrome, you may have many questions about the disorder and what it might mean for your son or daughter. The resources below may be of help in finding resources and support for the best quality of life and richness of experience for your sweet baby or child, as well as other families who share similar concerns and goals.

It is important to share information with family and friends who may require patience or be unexpected sources of support and encouragement.

National Organization for Rare Disorders
NORD - Ablepharon Macrostomia Syndrome
https://www.rarediseases.org

Allison Brooke's Web Page on Ablepharon-Macrostomia Syndrome
https://www.angelfire.com/ga2/AMS

Craniofacial Disorders - Family Village Links
https://www.familyvillage.wisc.edu/lib_cran.htm

FACES: The National Craniofacial Association
https://faces-cranio.org/links.htm

Web MD Article - Ablepharon-Macrostomia Syndrome (AMS
https://my.webmd.com/hw/health_guide_atoz/nord1093.asp

Browse for books of interest that may be found at your local library, bookstore, doctors office, parent group or online retailer for books about Children with Ablepharon-Macrostomia Syndrome or Craniofacial Disorders




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