It is important to share information with family and friends who may require patience or be unexpected sources of support and encouragement.
National Organization for Rare Disorders
NORD - Ablepharon Macrostomia Syndrome
Allison Brooke's Web Page on Ablepharon-Macrostomia Syndrome
Craniofacial Disorders - Family Village Links
FACES: The National Craniofacial Association
Web MD Article - Ablepharon-Macrostomia Syndrome (AMS
Browse for books of interest that may be found at your local library, bookstore, doctors office, parent group or online retailer for books about Children with Ablepharon-Macrostomia Syndrome or Craniofacial Disorders
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