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Balance and Neuromuscular Disease
While everyone knows about the “five senses” – sight, hearing, smell, taste, touch – little attention is paid to another of important sense, the sense of balance, unless problems develop. Many of the neuromuscular diseases affect balance.
Darius Goes West Movie Review
Even though he has a debilitating and fatal disease, Duchenne Muscular Dystrophy (DMD), Darius Weems shows us how to live in the documentary Darius Goes West. With the help of eleven friends, 15-year-old Darius embarks on a cross-country quest. This true story inspires, educates and entertains.
The mitochondrial myopathies are a group of genetic diseases that affect the mitochondria in the cells. These diseases are considered to be a neuromuscular disease, although this disease affects all the cells of the body.
What is proprioception?
While most student learn about the “five senses” in grade school, fewer students learn about an important sixth sense, proprioception. Proprioception involves the sense of where one’s body is in space, and is closely related to another important but often overlooked sense, one's sense of balance.
Performance Anxiety and Advocacy
Increasingly, I have opportunitites to speak to others about neuromuscular disease. I sometimes experience performance anxiety before or during my speaking, but have been learning to manage my stage fright.
Airport Security and Disability
Going through airport security checkpoints can be daunting, especially when mobility issues make assistive devices necessary. Learn about how the Transportation Security Administration (TSA) has anticipated these needs and has made provisions for screening individuals with mobility issues.
Thank You Jerry Lewis
For more than 50 years, Jerry Lewis tirelessly served the Muscular Dystrophy Association (MDA) and the neuromuscular diseases community, raising both funds and awareness. The magnitude of Lewis’ service cannot be denied and will not be forgotten.
Easy Yoga for Arthritis DVD Review
While not specific to neuromuscular disease, the modifications and detailed instructions given in the exercise DVD Easy Yoga for Arthritis with Peggy Cappy: Yoga for the Rest of Us will make the yoga exercises demonstrated appropriate for many individuals with neuromuscular disease.
The Teacher’s Guide to Neuromuscular Disease
Both teachers and parents will have many questions about how to best support a child with neuromuscular disease in the classroom. Available free from the MDA website, The Teacher’s Guide to Neuromuscular Disease will help answer these questions for teachers and parents.
Disability and Homelessness
According to a recent report, in 2010, for disabled individuals relying on U.S. Social Security Suplemental Income as their main or only source of income, Supplemental Income does not cover the cost of a modest one bedroom apartment. An estimated 20% of homeless adults in the U.S. are disabled.
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