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Support Groups and Neuromuscular Disease
If you do not yet belong to a support group, I strongly urge you to find a support group in your area or online. The relationships that you build will help you to live, cope, and even thrive despite neuromuscular disease.
CMT and Physical Therapy Training Resource
Because Charcot Marie Tooth is relatively rare, many physical therapists do not have much training or experience with CMT. The Charcot Marie Tooth Association (CMTA)and Physiotherapy Associates, Inc. (PTA) have partnered to provide a resource for physical therapists and their patients.
CMT and Footwear
The right shoes cannot stop the progression of CMT. They can, however, provide better stability, balance, and comfort. This can help those of us with CMT keep walking as well as possible for as long as possible.
Neuropathy and Daily Foot Care
With correct foot care and regular inspection, I can minimize problems and keep my feet as healthy as possible. If you have neuropathy, make sure to speak with your physician about the proper care of your feet.
The Rare Clinical Diseases Research Network
According to the Rare Clinical Diseases Research Network (RDCRN) website, the purpose of the RDCRN is to increase collaboration between the research and treatment efforts of the scientists and clinicians working with many different types of rare disease.
At an MDA Lock-Up
I spent part of my day recently “locked-up.” No, not in a real jail, but with all of the “jailbirds” participating in a local Muscular Dystrophy Association (MDA) Lock-Up. While raising money, participants also raise awareness of neuromuscular disease and MDA programs.
Healing Yoga for Aches and Pains DVD Review
Yoga, a low-impact exercise, has been recommended for individuals with neuromuscular disease. While not specific to neuromuscular disease, the gentle yoga demonstrated in the DVD Healing Yoga for Aches and Pains would be appropriate and beneficial for many individuals with neuromuscular disease.
What are peripheral nerves?
Having a basic understanding of the nerve cells of the peripheral nervous system can improve understanding of neuromuscular disease. While the various neuromuscular diseases differ in their cause and symptoms, each in some way affects the muscles and the nerves of the peripheral nervous system.
CMT, Grief, and Healing
Under the right circumstances, when I am not fatigued, when I wear orthortic bracing and when the ground level and firm, I walk well. Perhaps a casual observer would not know that I have any difficulties. It turns out, however, that I no longer walk well on the beach.
Duchenne Muscular Dystrophy
Duchenne muscular dystrophy (DMD) is one of the nine types of muscular dystrophies. The muscular dystrophies are a group of degenerative genetic diseases affecting the voluntary, and sometimes involuntary, muscles. DMD is caused by a problem in the gene that produces a protein called dystrophin.
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