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BellaOnline's Neuromuscular Diseases Editor

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 F E A T U R E   A R C H I V E  

Archive by Date | Archive by Article Title

Snow Plowed Into Handicap Parking Violates ADA
Ice and a couple of inches of new snow covered the parking lot and sidewalk. Unfortunately, there were no handicap accessible parking spaces available near the entrance, as snow had been plowed into them in order to clear the rest of the parking lot.

U.S. Legislative Update for Neuromuscular Diseases
Currently, important legislation affecting the neuromuscular disease community in the U.S. remains under consideration. As members of this community, it is important to remain informed about this legislation and to act in support of any legislation that is important to you.

MDA’s Shamrocks Against Dystrophy Program 2014
Retailers all over the U.S.A. sell green Shamrocks and gold Shamrocks. The money raised through the Shamrocks Against Dystrophy Program funds research, education, summer camps through the MDA. In 2013, Shamrocks raised a record-breaking $23.3 million!

Developing Resilience
Resilience has been defined by psychologists as the ability to adapt well to the difficulties in our lives including all kinds of adversity and stress. Resilience can help those of us who are coping with significant health challenges such as dealing with neuromuscular disease.

Discover Tai Chi for balance & mobility DVD Review
Discover Tai Chi for balance & mobility, a DVD exercise program led by Scott Cole, provides a 30-minute Tai Chi routine focusing on improving balance, strength, flexibility and mobility for individuals beginning a Tai Chi practice, older adults, and individuals with physical challenges.

Abilities Expo 2014
At the AbilitiesExpo, I had the opportunity to learn about the many products, services, and non-profit organizations that serve those with physical challenges, including those with neuromuscular disease. Admission to the Abilities Expo is free.

Winter Paralympics 2014
The 2014 Paralympic Winter Games will be held in Sochi, Russia in March 7 through 16, 2014. World class athletes will come from all over the world to compete. Athletes may compete in different categories, including standing, seated, and visually-impaired depending on their abilities and sport.

Falling on Ice
As I stepped out of my car, both of feet slipped out from under me. What I had thought was a puddle turned out to be black ice. Unable to break my fall, I landed hard on my already injured left hip and on my left wrist.

Educational Webinars from the CMTA
The Charcot Marie Tooth Association (CMTA) now offers free educational webinars featuring top experts. Topics include a variety of topics related to diagnosis, treatment, and living with Charcot Marie Tooth (CMT). Make sure to view these important educational webinars.

Using a Cane
"Your cane looks good on you,” a friend recently told me. Surprised, I searched his face to determine if he was joking. Since injuring my hip recently, I have used a cane when necessary. Delivered to my hospital room, the cane is not fancy or decorative, but basic and functional.

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