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Physical Therapy and Neuromuscular Disease
Physical therapy can be useful for many with neuromuscular disease in maintaining physical functioning as much as possible, leading to improved quality of life. Those interested should consult with their physician to determine if physical therapy would be beneficial.
What is Neuromuscular Disease?
The term 'neuromuscular disease' refers to a group of diseases. The common element in neuromuscular disease is that each of these diseases affects the peripheral nervous system. This category covers a wide range of varying diseases however, and these disease vary considerably.
Gratitude Works! Book Review
Highly recommended, Gratitude Works! A 21-Day Program for Creating Emotional Prosperity, written by Robert Emmons, Ph.D., overviews the body of research regarding the practice of gratitude. This book also lays out a three week program for starting a gratitude journal.
Hip Problems and Neuromuscular Disease
Until my recent injury, I had not considered the possibility that Charcot Marie Tooth could affect my hips. Neuromuscular disease can be a significant risk factor in the development of problems of the hip, however, including structural abnormalities, hip displacement, and arthritis.
I realized after a couple of days of feeling irritable and snapping at my family that I was having more than just an attitude problem -- I was having a gratitude problem. I had forgotten how much I have to be grateful. Instead, I was focusing on complaints and problems.
Dankso Kip Shoe Review
Finding shoes that fit properly with orthotics and Ankle Foot Orthoses (AFOs) can be challenging. Most of the time, I wore athletic shoes. So, I was excited when the salesperson at a local shoe store brought out the Dansko Kip to try. The Dansko Kip has the style of a casual lace-up loafer.
Newborn Screening Saves Lives Reauthorization Act
The Newborn Screening Saves Lives Reauthorization Act (H.R. 1281/S. 1417) was proposed earlier this year in the U.S. Senate and Congress. If passed, this Act would reauthorize federal programs related to newborn screening.
Newborn Screening and Pompe Disease Update
Recently, the U.S. Discretionary Advisory Committee on Heritable Disorders in Newborns and Children recommended that Pompe disease be added to the Recommended Uniform Screening Panel.
Meeting a Shooting STAR
Recently, I met a Shooting STAR. No, not a shooting star of the celestial kind, but of the human kind - the winner of the Charcot Marie Tooth Association’s “I’m a Shooting STAR” 2013 contest, ten-year-old Allison.
Influenza and Neuromuscular Disease
Individuals with neuromuscular disease are considered to be at high risk for complications from influenza such as pneumonia or bronchitis, hospitalization, and more rarely, death. Make sure to talk to your physician about influenza and ask if you should receive vaccination against the flu.
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