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Translational Research and Neuromuscular Disease
Translational research into neuromuscular disease focuses on taking basic research advances and ‘translating’ these results into usable therapies. Researchers are increasingly finding applications for basic research to the diagnosis, progression, and treatment of neuromuscular disease.
Contractures and Neuromuscular Disease
Contractures occur in the joints of many individuals with neuromuscular disease. These include muscular dystrophy, myopothy, Charcot Marie Tooth, ALS, and Friedrich’s ataxia. Contractures cause deformity in the affected joint, often leading to pain and functional difficulties.
Suzanne Andrews Functional Fitness DVDs Review
The Functional Fitness DVD series, created by occupational therapist Suzanne Andrews, provides a series of videos aimed at increasing functional fitness for those experiencing health issues. For purposes of this review, her Arthritis and Pain Free Back & Neck DVDs were sampled.
MDA's Free Public Webinar Series
Since 2010, the Muscular Dystrophy Association (MDA) has produced a series of free live and archived educational presentations called the Public Webinar Series. Expert-led topics include a variety of important issues. Make time to attend a high quality educational presentation from your own home.
“It’s Not Fair!” – Coping Spiritually
No, life is not fair: however, the more I focus on what I perceive others have that I do not have , the more unhappy and envious I become. I could easily allow myself to lose my joy. My antidote comes from focusing on prayer and gratitude to God, most often through my journaling.
39 Pounds of Love Documentary Review
The Documentary 39 Pounds of Love provides viewers a rare glimpse at a life well lived despite severe disability. This documentary follows the cross-country travels of Ami Ankilewitz, a 34 year old man with a rare form of the neuromuscular disease SMA/2 (spinal muscular atrophy).
What is Functional Fitness Training?
Functional fitness can help individuals with neuromuscular disease strengthen the muscles that they need to perform everyday activities. This can lead to improved balance, reduced injuries, and an improved quality of life.
CaringBridge Health Network Resource
CaringBridge offers a privacy protected social network community for individuals experiencing health issues such as neuromuscular disease. This nonprofit organization also offers the SupportPlanner calendar to help the family and friends coordinate care for that individual.
Classical Stretch Workout Review
Wondering how I could I get a good workout with non-impact exercise, I found one of my favorite options on public television – a 30-minute exercise program called Classical Stretch.
Research Registries and Neuromuscular Disease
Enrolling in a registry specific to neuromuscular disease will help individuals to be informed about clinical research regarding a specific disease or condition. In turn, disease registries will also aid researchers looking for qualified individuals to participate in research protocols.
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