I desire close, genuine relationships. Authentic sharing of my truth, even when I experience pain, must be part of that. I cannot foster close relationships while hiding behind empty words such as “fine” when someone asks how I am.

Range of motion therapy refers to a form of physical therapy designed to stretch the muscles, keep the joints flexible, decrease pain, and lessen the development of contractures for many individuals with neuromuscular disease, even those who cannot engage in more strenuous activities.

Often called an AFO, the term Ankle Foot Orthosis refers to a brace worn on the leg over the calf and foot. The brace supports the foot and ankle, holding the correct position and preventing foot drop. This type of brace is also sometimes called a foot drop brace.

Yesterday, I tripped over my own toes. This actually happens fairly often to me. One of the effects of Charcot Marie Tooth (CMT), the neuromuscular disease that I have been diagnosed with, is called foot drop.

Last week, I found something to be grateful for when a copy of The Upside of Down Times by Lisa Ryan arrived unexpectedly in the mail. Eagerly, I devoured this book in less than a day, and renewed my commitment to keeping a gratitude journal, and to showing my gratitude to others.

Try the six quizzes related to the Neuromuscular Diseases site, including the newest, the Neuromuscular Disease and the Feet Quiz. Quizzes give you a chance to test your knowledge in important areas that affect those with neuromuscular disease. Plus, they are fun and you just might learn something

Pes planus (flat foot, fallen arch) refers to an abnormally flattened arch. When standing, the entire foot will touch the floor. Pes planus is sometimes observed in individuals with Charcot Marie Tooth (CMT) and other neuromuscular diseases, but not as often as pes cavus (high arch) is observed.

Pes cavus, also called high foot arch or high instep, refers to an abnormally high arch and shortening in the foot. Pes cavus, caused by muscle imbalance, often occurs in individuals with Charcot Marie Tooth (CMT) and Friedrich’s Ataxia (FA), and less frequently in other neuromuscular diseases.

With the weather turning nicer, I get outside to walk more often. Walking for exercise has been recommended to me by my physician, and is often recommended to those with various types neuromuscular disease. About a year ago, I discovered the benefits of using walking poles while walking.

Recently, most of my journaling has taken the form of spiritual journaling. I have found this type of journaling to be beneficial to my ability to cope and thrive despite neuromuscular disease. Along with emotional and psychological benefits, journaling also has important health benefits.