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Performance Anxiety and Advocacy
Increasingly, I have opportunities to speak to others about neuromuscular disease. In the past, I sometimes experience performance anxiety before or during speaking, but I have been learning to manage my stage fright.
Gratitude and Neuromuscular Disease
Take the time to cultivate thankfulness. Then, express gratitude to others. Not only will you enhance your own wellbeing, you will brighten another person’s day as well.
What is proprioception?
While most student learn about the “five senses” in grade school, fewer students learn about an important sixth sense, proprioception. Proprioception involves the sense of where one’s body is in space, and is closely related to another important but often overlooked sense, one's sense of balance.
History of Voting Accessibility in the U.S.
Voting in elections remains a fundamental right, privilege, and responsibility for each U.S. citizen. In the past, polling places were not always easily accessible to those with mobility issues or other disabilities. Today, federal laws require that polling places be accessible.
Journaling and Neuromuscular Disease
The benefits of personal writing have been well documented, but people find it difficult to get started. To help you, I have provided a few journaling prompts about the experience of having a neuromuscular disease to help you begin your journaling practice.
TSA Card Available for Travelers with Disability
While traveling through security checkpoints with a disability may not be easy, clear communication with the TSA Officers regarding one’s disability will simplify the process. The TSA Disability Notification Card may make moving through airport security a little bit easier.
Respecting My Own Physical Limitations
When I fail to respect my physical limitations and rely on my own strength, I can easily over to it, and even hurt myself. When I respect the limitations that the neuromuscular disease Charcot Marie Tooth causes me, I avoid hurting myself, and, ultimately, can accomplish more.
Influenza Season 2015-2016
Influenza, caused by a virus, primarily affects the respiratory system. Influenza is also known as the flu, seasonal flu or respiratory flu. While the flu vaccine will not protect against all cases of influenza, it does provide significant protection.
My Child Has CMT Resource Review
The publication My Child Has CMT: A guide for parents of children with Charcot-Marie-Tooth can help to answer the many questions parents of a child with CMT will have, and will help parents to connect their child with needed treatment and resources.
A Teacher’s Guide to Neuromuscular Disease Review
Both teachers and parents will have many questions about how to best support a child with neuromuscular disease in the classroom. Available free from the MDA website, A Teacher’s Guide to Neuromuscular Disease will help answer these questions for teachers and parents.
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